Projects per year
As professor of end-of-life research, my research focuses on patients in the last phase of life and their relatives. The last phase of life can concern the last years, months or weeks of life when it has become clear that the end of life might be approaching because of a life-threatening illness or old age. My research started over two decades ago with an emphasis on euthanasia and other end-of-life decisions. While this is still an important research focus (a.o. with my involvement the evaluation of the euthanasia law that takes place every 5 years), my research focus has broadened to (early palliative care. It includes epidemiological studies giving insight in characteristics of patients in the last phase of life and the care they receive, qualitative studies giving insight in experiences of patients, relatives, physicians, nurses and other care professionals, and studies aimed at evaluating new care initiatives (e.g. PaTz- groups; see PaTz.nu) both with regard to effect and implementation.
In the growing and rapidly developing field of palliative care strong cooperation between care, education and research is extra important. Within Amsterdam UMC I contribute to this as chair of the Expertise Center for Palliative Care (EPZ). The EPZ is part of the consortium ‘Palliative Zorg Noord-Holland en Flevoland’ in which we work together with regional care organizations work together on many projects aimed at improving palliative care. (www.palliatevezorgnoordhollandflevoland.nl).
My research is embedded in the research group Public Health at the End of Life The research in this group aims to contribute to quality of life and quality of dying of people with a life-threatening illness and to also contribute to the wellbeing of their relatives. First and foremost by studies on the quality and organization of care at the end of life, in all health care settings and among all stakeholders. Important subthemes are advance care planning, palliative care, family care, nursing care and decision-making at the end-of-life.
This research group falls within the section Quality and Organization of Care of the department of Public and Occupational Health
Expertise related to UN Sustainable Development Goals
In 2015, UN member states agreed to 17 global Sustainable Development Goals (SDGs) to end poverty, protect the planet and ensure prosperity for all. This person’s work contributes towards the following SDG(s):
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SYMptom monitoring with Patient-Reported Outcomes using a web application among LUNG cancer patients in the Netherlands
1/10/2019 → 30/09/2022
Caregiver’s burden at the end of life of their loved one: insights from a longitudinal qualitative study among working family caregiversBijnsdorp, F. M., Onwuteaka-Philipsen, B. D., Boot, C. C. R. L., van der Beek, A. J. & Pasman, H. R. W., 1 Dec 2022, In: BMC Palliative Care. 21, 1, 142.
Research output: Contribution to journal › Article › Academic › peer-reviewOpen Access
Dying in times of COVID-19: Experiences in different care settings – An online questionnaire study among bereaved relatives (the CO-LIVE study)Yildiz, B., Korfage, I. J., Witkamp, E. F. E., Goossensen, A., van Lent, L. G. G., Pasman, H. R., Onwuteaka-Philipsen, B. D., Zee, M. & van der Heide, A., Apr 2022, In: Palliative Medicine. 36, 4, p. 751-761 11 p.
Research output: Contribution to journal › Article › Academic › peer-reviewOpen Access2 Citations (Scopus)
Verkissen, M. N., Penders, Y. W. H., Onwuteaka-Philipsen, B. D., Moreels, S., Donker, G. A., Vega Alonso, T., van den Block, L. & Deliens, L., 1 Jul 2022, In: BMJ Supportive and Palliative Care. 12, e2, p. e236-e247
Research output: Contribution to Journal › Article › Academic › peer-review1 Citation (Scopus)
Evaluating quality of care at the end of life and setting best practice performance standards: a population-based observational study using linked routinely collected administrative databasesOosterveld-Vlug, M. G., Heins, M. J., Boddaert, M. S. A., Engels, Y., Heide, A. V. D., Onwuteaka-Philipsen, B. D., Reyners, A. K. L. & Francke, A. L., 1 Dec 2022, In: BMC Palliative Care. 21, 1, 51.
Research output: Contribution to Journal › Article › Academic › peer-reviewOpen Access