Lidewij Henneman

PROF.DR., (Principal Investigator)

1997 …2024

Research activity per year

If you made any changes in Pure these will be visible here soon.

Personal profile

Research interests

Lidewij Henneman is professor of Patient Perspectives on Genetic Testing at the department of Human Genetics, Amsterdam UMC. She is director of the Amsterdam Reproduction & Development research institute and head of the section Community Genetics and Public Health Genomics.

Her research interests focus on how the applications of new genetic technologies before, during and after pregnancy impact individuals and society. Together with her research team she investigates the perspectives and decisions of (potential) users to help align responsible implementation of applications with the needs of the community, employing both qualitative and quantitative research methodologies. 

Areas of interest are: preconception carrier screening for recessive diseases, prenatal screening, expansion of newborn bloodspot screening, and use of next generation sequencing for prenatal and postnatal diagnosis of children with congenital condition.

To set policy agendas and fill the gaps in patient care and support, the research is done in close collaboration with the patient organization Dutch Patient Alliance for Rare and Genetic Diseases (VSOP), relevant healthcare professionals, key (inter)national organizations, and other stakeholders in the field. 

Dr. Henneman is board member of the Dutch non-invasive prenatal test (NIPT) Consortium and coordinates research on women’s perspectives (TRIDENT studies), receiving the ZonMw Parel in 2023. She won the Societal Impact Award 2016 (topic NIPT), and received the Dutch Public Health Award (Volksgezondheidsprijs) for her PhD thesis on Preconceptional cystic fibrosis carrier screening. 

She (co-)published over 170 international articles (H-index 36) and completed supervision of 16 PhD students/thesis. 

Expertise related to UN Sustainable Development Goals

In 2015, UN member states agreed to 17 global Sustainable Development Goals (SDGs) to end poverty, protect the planet and ensure prosperity for all. This person’s work contributes towards the following SDG(s):

  • SDG 3 - Good Health and Well-being

Education/Academic qualification

Appointed professor of patient perspectives on genetic testing, Vrije Universiteit Amsterdam, Netherlands

Award Date: 1 Oct 2020

PhD, Preconceptional cystic fibrosis carrier screening - desirability and feasibility in the Netherlands, Vrije Universiteit Amsterdam, Netherlands

Award Date: 19 Jun 2002


  • H Social Sciences (General)
  • Prenatal screening
  • Preconception carrier screening
  • Newborn screening
  • Patient perspective
  • Genetics

Collaborations and top research areas from the last five years

Recent external collaboration on country/territory level. Dive into details by clicking on the dots or