Research output per year
Research output per year
PROF.DR., (Principal Investigator)
Research activity per year
Lidewij Henneman is professor of Patient Perspectives on Genetic Testing at the department of Human Genetics, Amsterdam UMC. She is director of the Amsterdam Reproduction & Development research institute and head of the section Community Genetics and Public Health Genomics.
Her research interests focus on the impact of applications of new genetic technologies before, during and after pregnancy on individuals and society. Together with her research team, she investigates the perspectives and decisions of (potential) users to help align responsible implementation of applications with community needs, employing both qualitative and quantitative research methodologies.
Areas of interest include: preconception carrier screening for recessive diseases, expansion of newborn bloodspot screening, and the use of next generation sequencing for prenatal and postnatal diagnosis of children with congenital conditions.
To set policy agendas and fill the gaps in patient care and support, the research is done in close collaboration with the patient organization Dutch Patient Alliance for Rare and Genetic Diseases (VSOP), relevant healthcare professionals, key (inter)national organizations, and other stakeholders in the field.
Dr. Henneman is board member of the Dutch non-invasive prenatal test (NIPT) Consortium and coordinates research on women’s perspectives (TRIDENT studies), receiving the ZonMw Parel in 2023. She won the Societal Impact Award 2016 (topic NIPT), and received the Dutch Public Health Award (Volksgezondheidsprijs) for her PhD thesis on Preconceptional cystic fibrosis carrier screening.
She (co-)published over 170 international articles (H-index 37) and completed supervision of 16 PhD students/thesis.
In 2015, UN member states agreed to 17 global Sustainable Development Goals (SDGs) to end poverty, protect the planet and ensure prosperity for all. This person’s work contributes towards the following SDG(s):
Appointed professor of patient perspectives on genetic testing, Vrije Universiteit Amsterdam, Netherlands
Award Date: 1 Oct 2020
PhD, Preconceptional cystic fibrosis carrier screening - desirability and feasibility in the Netherlands, Vrije Universiteit Amsterdam, Netherlands
Award Date: 19 Jun 2002
Research output: Contribution to journal › Article › Academic › peer-review
Research output: Contribution to journal › Article › Academic › peer-review
Research output: Contribution to journal › Article › Academic › peer-review
Research output: Contribution to conference › Abstract › Academic
Research output: Contribution to journal › Article › Academic › peer-review
Henneman, Lidewij (Recipient), Sistermans, Erik (Recipient), Bax, Caroline (Recipient), Pieters, Mijntje (Recipient), Bekker, Mireille (Recipient), Macville, Merryn (Recipient), van der Ven, Jeanine (Recipient) & Galjaard, Robert-Jan (Recipient), 26 Jan 2023
Prize › Societal
Lidewij Henneman (Member)
Activity: Membership › Membership of committee › Academic
Lidewij Henneman (Member)
Activity: Membership › Membership of committee › Academic
Lidewij Henneman (Chair)
Activity: Membership › Membership of board › Academic
Lidewij Henneman (Member)
Activity: Membership › Membership of committee › Academic
Lidewij Henneman (Member)
Activity: Membership › Membership of committee › Academic
15/01/2022
1 Media contribution
Press/Media: Interview
18/06/2018
1 Media contribution
Press/Media: Interview