Abstract
Introduction: Deficits in awareness have been observed in people with Huntington’s disease (HD). How this relates to the quality of life (QoL) and neuropsychiatric symptoms (NPS) in people with HD living in specialized nursing homes (NHs) is currently unknown. Therefore, we studied awareness of functional deficits in people with HD living in specialized NHs and how this relates to QoL and NPS.
Methods: This cross-sectional study included people with HD living in specialized NHs. The Patient Competency Rating Scale (PCRS) was used to assess the level of awareness of functional deficits. Both patient and formal caregiver gave their rating in order to calculate a discrepancy score. NPS were measured by using the Neuropsychiatric Inventory (NPI) and Depression Intensity Scale Circles (DISCs). The Manchester Short Assessment of Qol was used for measuring QoL.
Results: The PCRS was completed by 48% (84/174) of the residents. Awareness was mildly impaired in 61.9% (n=52), moderately impaired in 26.2% (n=22) and severely impaired in 11.9% (n=10) of the residents. Awareness was associated with QoL (p
Key conclusions: Impaired awareness of functional deficits is common among people with HD living in specialized NHs and is associated with depression and QoL, but not with NPS.
Methods: This cross-sectional study included people with HD living in specialized NHs. The Patient Competency Rating Scale (PCRS) was used to assess the level of awareness of functional deficits. Both patient and formal caregiver gave their rating in order to calculate a discrepancy score. NPS were measured by using the Neuropsychiatric Inventory (NPI) and Depression Intensity Scale Circles (DISCs). The Manchester Short Assessment of Qol was used for measuring QoL.
Results: The PCRS was completed by 48% (84/174) of the residents. Awareness was mildly impaired in 61.9% (n=52), moderately impaired in 26.2% (n=22) and severely impaired in 11.9% (n=10) of the residents. Awareness was associated with QoL (p
Key conclusions: Impaired awareness of functional deficits is common among people with HD living in specialized NHs and is associated with depression and QoL, but not with NPS.
| Original language | English |
|---|---|
| Publication status | Published - 30 Sept 2022 |
| Event | 18th International Congress of the European Union Geriatric Medicine Society (EUGMS) - London Duration: 28 Sept 2022 → 30 Sept 2022 |
Conference
| Conference | 18th International Congress of the European Union Geriatric Medicine Society (EUGMS) |
|---|---|
| City | London |
| Period | 28/09/2022 → 30/09/2022 |