TY - JOUR
T1 - A comparison of a community-based dementia support programme and nursing home-based day care: Effects on carer needs, emotional burden and quality of life
AU - van Haeften-van Dijk, A. Marijke
AU - Meiland, Franka J.
AU - Hattink, Bart J. J.
AU - Bakker, Ton J. EM
AU - Dröes, Rose-Marie
N1 - Funding Information: The author(s) received disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: VitaValley / Noaber Foundation, ZonMw, Dutch National Elderly Care Programme (Grant ID: 314080401), Foundation Sint Jacob. Publisher Copyright: © The Author(s) 2019.
PY - 2020
Y1 - 2020
N2 - Objectives: Within an implementation study, we investigated the effectiveness of a combined community-based day care programme for persons with dementia and their carers versus traditional psychogeriatric nursing home-based day care. The effects on needs, sense of competence, burden and quality of life of the family carers were studied. Methods: A pretest–posttest control group design among family carers of people with dementia who joined community-based day care centres (n = 67) or nursing home-based day care centres (n = 64). Results: After six months, family carers using community-based day care more often expressed an unmet need for support regarding psychological distress than carers utilising nursing home-based day care. No effect of community-based day care on sense of competence was found. However, carers with a low sense of competence at baseline using community-based compared to nursing home-based day care became less emotionally burdened by behaviour and mood problems of their relative. Conclusion and discussion: Overall, no added value of community-based day care on needs, sense of competence, burden and quality of life was found. Increased unmet needs on psychological distress may have been caused by the increased awareness of carers participating in the carer programme of community-based day care regarding their own unmet support needs. For carers with a low sense of competence, community-based day care proves to decrease the impact of behaviour and mood problems of their relative. A larger controlled follow-up study is recommended to understand the long-term effects of community-based day care over nursing home-based day care.
AB - Objectives: Within an implementation study, we investigated the effectiveness of a combined community-based day care programme for persons with dementia and their carers versus traditional psychogeriatric nursing home-based day care. The effects on needs, sense of competence, burden and quality of life of the family carers were studied. Methods: A pretest–posttest control group design among family carers of people with dementia who joined community-based day care centres (n = 67) or nursing home-based day care centres (n = 64). Results: After six months, family carers using community-based day care more often expressed an unmet need for support regarding psychological distress than carers utilising nursing home-based day care. No effect of community-based day care on sense of competence was found. However, carers with a low sense of competence at baseline using community-based compared to nursing home-based day care became less emotionally burdened by behaviour and mood problems of their relative. Conclusion and discussion: Overall, no added value of community-based day care on needs, sense of competence, burden and quality of life was found. Increased unmet needs on psychological distress may have been caused by the increased awareness of carers participating in the carer programme of community-based day care regarding their own unmet support needs. For carers with a low sense of competence, community-based day care proves to decrease the impact of behaviour and mood problems of their relative. A larger controlled follow-up study is recommended to understand the long-term effects of community-based day care over nursing home-based day care.
UR - https://www.scopus.com/inward/record.uri?partnerID=HzOxMe3b&scp=85070264251&origin=inward
UR - https://www.ncbi.nlm.nih.gov/pubmed/31315451
U2 - https://doi.org/10.1177/1471301219861767
DO - https://doi.org/10.1177/1471301219861767
M3 - Article
C2 - 31315451
SN - 1471-3012
VL - 19
SP - 2836
EP - 2856
JO - Dementia
JF - Dementia
IS - 8
ER -