A structured expressive writing activity targeting body image-related distress among head and neck cancer survivors: who do we reach and what are the effects?

Heleen C. Melissant, Femke Jansen, Simone E.J. Eerenstein, Pim Cuijpers, Birgit I. Lissenberg-Witte, Kerry A. Sherman, Ellen T.M. Laan, C. René Leemans, Irma M. Verdonck-de Leeuw

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9 Citations (Scopus)

Abstract

Purpose: The aim of this pretest–posttest study was to investigate the reach and effects of My Changed Body (MyCB), an expressive writing activity based on self-compassion, among head and neck cancer (HNC) survivors. Methods: This pilot study had a pretest–posttest design. HNC survivors received an invitation to complete a baseline survey on body image-related distress. At the end of the survey, HNC survivors were asked if they were interested in the intervention study. This entailed the writing activity and a survey 1 week and 1 month post-intervention. The reach was calculated by dividing the number of participants in the intervention study, by the number of (1) eligible HNC survivors and (2) those who filled in the baseline survey. Linear mixed models were used to analyze the effect on body image-related distress. Logistic regression analysis was used to investigate factors associated with the reach and reduced body image-related distress. MyCB was evaluated using study-specific questions. Results: The reach of MyCB was 15–33% (depending on reference group) and was associated with lower education level, more social eating problems, and fewer wound healing problems. Among the 87 participants, 9 (10%) showed a clinically relevant improvement in body image-related distress. No significant effect on body image-related distress was found. Self-compassion improved significantly during follow-up until 1 month post-intervention (p=0.003). Users rated satisfaction with MyCB as 7.2/10. Conclusion: MyCB does not significantly improve body image-related distress, but is likely to increase self-compassion, which sustains for at least 1 month.

Original languageEnglish
Pages (from-to)5763-5776
Number of pages14
JournalSupportive Care in Cancer
Volume29
Issue number10
Early online date18 Mar 2021
DOIs
Publication statusPublished - Oct 2021

Keywords

  • Body image
  • Expressive writing
  • Head and neck cancer
  • Health-related quality of life
  • Self-compassion

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