TY - JOUR
T1 - Asian patients’ perspectives on advance care planning: A mixed-method systematic review and conceptual framework
T2 - A mixed-method systematic review and conceptual framework
AU - Martina, Diah
AU - Geerse, Olaf P.
AU - Lin, Cheng-Pei
AU - Kristanti, Martina S.
AU - Bramer, Wichor M.
AU - Mori, Masanori
AU - Korfage, Ida J.
AU - van der Heide, Agnes
AU - Rietjens, Judith A. C.
AU - van der Rijt, Carin C. D.
N1 - Funding Information: The author(s) disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: This work was supported by the Indonesia Endowment Fund for Education (Lembaga Pengelola Dana Pendidikan, LPDP) of the Indonesian Ministry of Finance (grant number 201711220412068). The funding body had no role in the design and conduct of the study; collection, management, analysis, and interpretation of the data; preparation, review, or approval of the manuscript; or the decision to submit the manuscript for publication. Publisher Copyright: © The Author(s) 2021.
PY - 2021/12/1
Y1 - 2021/12/1
N2 - Background: Asian healthcare professionals hold that patients’ families play an essential role in advance care planning. Aim: To systematically synthesize evidence regarding Asian patients’ perspectives on advance care planning and their underlying motives. Design: Mixed-method systematic review and the development of a conceptual framework (PROSPERO: CRD42018099980). Data sources: EMBASE, MEDLINE, Web of Science, and Google Scholar were searched for studies published until July 27, 2020. We included studies concerning seriously-ill Asian patients’ perspectives on advance care planning or their underlying motives for engaging or not engaging in it. Results: Thirty-six articles were included; 22 were quantitative and 27 were from high-income countries. Thirty-nine to ninety percent of Asian patients were willing to engage in advance care planning. Our framework highlighted that this willingness was influenced not only by their knowledge of their disease and of advance care planning, but also by their beliefs regarding: (1) its consequences; (2) whether its concept was in accordance with their faith and their families’ or physicians’ wishes; and (3) the presence of its barriers. Essential considerations of patients’ engagement were their preferences: (1) for being actively engaged or, alternatively, for delegating autonomy to others; (2) the timing, and (3) whether or not the conversations would be documented. Conclusion: The essential first step to engaging patients in advance care planning is to educate them on it and on their diseases. Asian patients’ various beliefs about advance care planning should be accommodated, especially their preferences regarding their role in it, its timing, and its documentation.
AB - Background: Asian healthcare professionals hold that patients’ families play an essential role in advance care planning. Aim: To systematically synthesize evidence regarding Asian patients’ perspectives on advance care planning and their underlying motives. Design: Mixed-method systematic review and the development of a conceptual framework (PROSPERO: CRD42018099980). Data sources: EMBASE, MEDLINE, Web of Science, and Google Scholar were searched for studies published until July 27, 2020. We included studies concerning seriously-ill Asian patients’ perspectives on advance care planning or their underlying motives for engaging or not engaging in it. Results: Thirty-six articles were included; 22 were quantitative and 27 were from high-income countries. Thirty-nine to ninety percent of Asian patients were willing to engage in advance care planning. Our framework highlighted that this willingness was influenced not only by their knowledge of their disease and of advance care planning, but also by their beliefs regarding: (1) its consequences; (2) whether its concept was in accordance with their faith and their families’ or physicians’ wishes; and (3) the presence of its barriers. Essential considerations of patients’ engagement were their preferences: (1) for being actively engaged or, alternatively, for delegating autonomy to others; (2) the timing, and (3) whether or not the conversations would be documented. Conclusion: The essential first step to engaging patients in advance care planning is to educate them on it and on their diseases. Asian patients’ various beliefs about advance care planning should be accommodated, especially their preferences regarding their role in it, its timing, and its documentation.
KW - Advance Care Planning
KW - Asian continental ancestry group
KW - Asians
KW - Communication
KW - Health Personnel
KW - Humans
KW - Patient Participation
KW - attitude
KW - critical illness
KW - mixed design
KW - patient preference
KW - systematic review
UR - http://www.scopus.com/inward/record.url?scp=85114441011&partnerID=8YFLogxK
UR - https://www.scopus.com/inward/record.uri?partnerID=HzOxMe3b&scp=85114441011&origin=inward
UR - https://www.ncbi.nlm.nih.gov/pubmed/34488509
U2 - https://doi.org/10.1177/02692163211042530
DO - https://doi.org/10.1177/02692163211042530
M3 - Review article
C2 - 34488509
SN - 0269-2163
VL - 35
SP - 1776
EP - 1792
JO - Palliative medicine
JF - Palliative medicine
IS - 10
ER -