Assessment of a Structured Self-Management Support Intervention by Nurses for Patients With Incurable Cancer

Anke J E de Veer, Vina N Slev, H Roeline Pasman, Irma M Verdonck-de Leeuw, Anneke L Francke, Cornelia F van Uden-Kraan

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5 Citations (Scopus)


OBJECTIVES: To gain an understanding of the perceptions of patients with incurable cancer regarding a new nurse-led self-management support intervention with an integrated eHealth application (Oncokompas) and its potential effectiveness. SAMPLE & SETTING: 36 patients receiving support in the home setting. METHODS & VARIABLES: A pre- and post-test mixed-methods design was used with a period of 12 weeks between the tests and qualitative interviews. Outcome measures were the perceived application of the intervention, patient satisfaction, patient activation, and quality of life. RESULTS: 85% of patients were satisfied with the assessment of their needs and the advice received. They valued nurses' expertise and the assistance provided in their homes. Twenty-five percent of the patients used Oncokompas. However, no statistically significant changes in patient activation and quality of life were found. IMPLICATIONS FOR NURSING: This intervention can be used for encouraging self-management by patients with incurable cancer. Additional refinement and tailoring is desirable. Offering the intervention as early in the palliative phase as possible is recommended.

Original languageEnglish
Pages (from-to)305-317
Number of pages13
JournalOncology nursing forum
Issue number3
Publication statusPublished - 1 May 2020


  • EHealth
  • Palliative care
  • Patient activation
  • Quality of life
  • Self-management

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