Caregiver Burden, Psychological Distress and Quality of Life among Informal Caregivers of Patients with Head and Neck Cancer: A Longitudinal Study

K.S. Van Hof, A. Hoesseini, M.C. Dorr, I.M. Verdonck-de Leeuw, F. Jansen, C.R. Leemans, R.P. Takes, C.H.J. Terhaard, R.J. Baatenburg de Jong, A. Sewnaik, M.P.J. Offerman

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9 Citations (Scopus)

Abstract

(1) Background: The aim of this study was to investigate caregiver burden among informal caregivers of head and neck cancer patients, in relation to distress and quality of life (QoL), and the relationship between informal caregivers and patients.

(2) Methods: Data of 234 dyads from the multicenter prospective cohort study Netherlands Quality of life and Biomedical Cohort studies in cancer was used. Caregiver burden, psychological distress, global QoL, physical and social functioning were measured from baseline until 24 months after treatment. (

4) Conclusions: This prospective cohort study shows the high burden of caring for HNC patients, the impact of this burden and the interaction between caregiver and patient. We suggest that healthcare professionals include caregivers in counseling and support.

Original languageEnglish
Article number16304
Pages (from-to)1-15
Number of pages15
JournalInternational journal of environmental research and public health
Volume19
Issue number23
DOIs
Publication statusPublished - 1 Dec 2022

Keywords

  • Adaptation, Psychological
  • Caregivers/psychology
  • Head and Neck Neoplasms
  • Humans
  • Longitudinal Studies
  • Prospective Studies
  • Psychological Distress
  • Quality of Life/psychology
  • caregiver burden
  • informal caregivers
  • patient reported outcome measures
  • quality of life

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