TY - JOUR
T1 - Evaluating the feasibility, experiences, facilitators of and barriers to carers and volunteers delivering Namaste Care to people with dementia in their own home
T2 - a qualitative interview study in the UK and the Netherlands
AU - Haaksma, Miriam L.
AU - O'Driscoll, Colette
AU - Joling, Karlijn J.
AU - Achterberg, Wilco P.
AU - Francke, Anneke L.
AU - van der Steen, Jenny T.
AU - Smaling, Hanneke J. A.
N1 - Funding Information: This study was funded by the Netherlands Organisation for Health Research and Development (grant number: 733050302), Fonds NutsOhra (grant number: 1405-181) and the University Network for the Care Sector South Holland. Publisher Copyright: © Author(s) (or their employer(s)) 2022. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ.
PY - 2022/11/14
Y1 - 2022/11/14
N2 - Objectives To evaluate the feasibility, facilitators of and barriers to delivering Namaste Care by volunteers and family carers to community-dwelling people with dementia, and to map family carers and volunteers' experiences with the programme. Design Qualitative interview study with two phases: (1) preparation phase; (2) pilot phase. Setting Private residences of community-dwelling people with dementia in the UK and the Netherlands. Participants Family carers and volunteers of community-dwelling people with dementia (phase 1: 36 Dutch interviews, phase 2: 9 Dutch and 16 UK interviews). Intervention Namaste Care is a multicomponent psychosocial programme, originally developed for people with dementia residing in long-term care facilities. Meaningful activities were offered by carers and volunteers. Each person with dementia was offered 10 one-hour sessions. Results Phase 1: Namaste Care was deemed feasible for community-dwelling people with dementia and no major adaptations to the programme were considered necessary. Phase 2: perceived effects of Namaste Care on people with dementia included improved mood and increased interaction. The programme appeared enriching for both family carers and volunteers, providing joy, respite from care and new insights for coping with challenging behaviour. A flexible attitude of the Namaste provider facilitated its delivery. High caregiver burden and a strained relationship between the family carer and person with dementia were considered barriers. Experiences of family carers and volunteers with Namaste Care were very positive (mean satisfaction rating: 8.7 out of 10, SD=0.9, range 7-10). Conclusion We recommend offering Namaste Care delivered by volunteers, preferably multiple sessions per week of 1.5-2 hours to optimise quality of life of community-dwelling people with dementia. Working with well-matched, flexible Namaste providers is pivotal. Family involvement should be encouraged, although the extent should be adapted depending on preference, caregiver burden and the relationship between the family carer and the person with dementia.
AB - Objectives To evaluate the feasibility, facilitators of and barriers to delivering Namaste Care by volunteers and family carers to community-dwelling people with dementia, and to map family carers and volunteers' experiences with the programme. Design Qualitative interview study with two phases: (1) preparation phase; (2) pilot phase. Setting Private residences of community-dwelling people with dementia in the UK and the Netherlands. Participants Family carers and volunteers of community-dwelling people with dementia (phase 1: 36 Dutch interviews, phase 2: 9 Dutch and 16 UK interviews). Intervention Namaste Care is a multicomponent psychosocial programme, originally developed for people with dementia residing in long-term care facilities. Meaningful activities were offered by carers and volunteers. Each person with dementia was offered 10 one-hour sessions. Results Phase 1: Namaste Care was deemed feasible for community-dwelling people with dementia and no major adaptations to the programme were considered necessary. Phase 2: perceived effects of Namaste Care on people with dementia included improved mood and increased interaction. The programme appeared enriching for both family carers and volunteers, providing joy, respite from care and new insights for coping with challenging behaviour. A flexible attitude of the Namaste provider facilitated its delivery. High caregiver burden and a strained relationship between the family carer and person with dementia were considered barriers. Experiences of family carers and volunteers with Namaste Care were very positive (mean satisfaction rating: 8.7 out of 10, SD=0.9, range 7-10). Conclusion We recommend offering Namaste Care delivered by volunteers, preferably multiple sessions per week of 1.5-2 hours to optimise quality of life of community-dwelling people with dementia. Working with well-matched, flexible Namaste providers is pivotal. Family involvement should be encouraged, although the extent should be adapted depending on preference, caregiver burden and the relationship between the family carer and the person with dementia.
KW - Namaste Care
KW - carers
KW - community-dwelling
KW - dementia
KW - multisensory
UR - http://www.scopus.com/inward/record.url?scp=85141981384&partnerID=8YFLogxK
U2 - https://doi.org/10.1136/bmjopen-2022-063422
DO - https://doi.org/10.1136/bmjopen-2022-063422
M3 - Article
C2 - 36375973
SN - 2044-6055
VL - 12
SP - e063422
JO - BMJ Open
JF - BMJ Open
IS - 11
M1 - e063422
ER -