Lack of Correlation of Sinonasal and Otologic Reported Symptoms With Objective Measurements Among Patients With Primary Ciliary Dyskinesia: An International Study

Yin Ting Lam; Jean-François Papon; Mihaela Alexandru; Andreas Anagiotos; Miguel Armengot; Mieke Boon; Andrea Burgess; Nathalie Caversaccio; Suzanne Crowley; Sinan Ahmed D. Dheyauldeen; Nagehan Emiralioglu; Ela Erdem; Christine van Gogh; Yasemin Gokdemir; Onder Gunaydın; Eric G. Haarman; Amanda Harris; Isolde Hayn; Hasnaa Ismail-Koch; Bulent Karadag; C. line Kempeneers; Sookyung Kim; Natalie Lorent; Ugur Ozcelik; Charlotte Pioch; Anne-Lise M. L. Poirrier; Ana Reula; Jobst Roehmel; Panayiotis Yiallouros; on behalf of the EPIC-PCD team

doi:https://doi.org/10.21053/ceo.2023.01130

Lack of Correlation of Sinonasal and Otologic Reported Symptoms With Objective Measurements Among Patients With Primary Ciliary Dyskinesia: An International Study

Yin Ting Lam, Jean-François Papon, Mihaela Alexandru, Andreas Anagiotos, Miguel Armengot, Mieke Boon, Andrea Burgess, Nathalie Caversaccio, Suzanne Crowley, Sinan Ahmed D. Dheyauldeen, Nagehan Emiralioglu, Ela Erdem, Christine van Gogh, Yasemin Gokdemir, Onder Gunaydın, Eric G. Haarman, Amanda Harris, Isolde Hayn, Hasnaa Ismail-Koch, Bulent KaradagC. line Kempeneers, Sookyung Kim, Natalie Lorent, Ugur Ozcelik, Charlotte Pioch, Anne-Lise M. L. Poirrier, Ana Reula, Jobst Roehmel, Panayiotis Yiallouros, on behalf of the EPIC-PCD team

Research output: Contribution to journal › Article › Academic › peer-review

Original language	English
Pages (from-to)	407-412
Number of pages	6
Journal	Clinical and Experimental Otorhinolaryngology
Volume	16
Issue number	4
DOIs	https://doi.org/10.21053/ceo.2023.01130
Publication status	Published - 1 Nov 2023

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https://doi.org/10.21053/ceo.2023.01130

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Lam, Y. T., Papon, J.-F., Alexandru, M., Anagiotos, A., Armengot, M., Boon, M., Burgess, A., Caversaccio, N., Crowley, S., Dheyauldeen, S. A. D., Emiralioglu, N., Erdem, E., van Gogh, C., Gokdemir, Y., Gunaydın, O., Haarman, E. G., Harris, A., Hayn, I., Ismail-Koch, H., ... on behalf of the EPIC-PCD team (2023). Lack of Correlation of Sinonasal and Otologic Reported Symptoms With Objective Measurements Among Patients With Primary Ciliary Dyskinesia: An International Study. Clinical and Experimental Otorhinolaryngology, 16(4), 407-412. https://doi.org/10.21053/ceo.2023.01130

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title = "Lack of Correlation of Sinonasal and Otologic Reported Symptoms With Objective Measurements Among Patients With Primary Ciliary Dyskinesia: An International Study",

author = "Lam, {Yin Ting} and Jean-Fran{\c c}ois Papon and Mihaela Alexandru and Andreas Anagiotos and Miguel Armengot and Mieke Boon and Andrea Burgess and Nathalie Caversaccio and Suzanne Crowley and Dheyauldeen, {Sinan Ahmed D.} and Nagehan Emiralioglu and Ela Erdem and {van Gogh}, Christine and Yasemin Gokdemir and Onder Gunaydın and Haarman, {Eric G.} and Amanda Harris and Isolde Hayn and Hasnaa Ismail-Koch and Bulent Karadag and Kempeneers, {C. line} and Sookyung Kim and Natalie Lorent and Ugur Ozcelik and Charlotte Pioch and Poirrier, {Anne-Lise M. L.} and Ana Reula and Jobst Roehmel and Panayiotis Yiallouros and {on behalf of the EPIC-PCD team} and Myrofora Goutaki",

note = "Funding Information: JFP reports personal fees from Sanofi, GSK, Medtronic and ALK outside the submitted work. MB reports grants from Forton grant (King Baudouin Foundation) 2020-J1810150-217926 Cystic fibrosis research and personal fees from Vertex outside the submitted work. JR received grants and clinical study rec-ompensations from Vertex, INSMED, Medical Research Council/ UK, BMBF, Mukoviszidose Institut outside the submitted work. ALMLP received speaker honorarium from GSK and Sanofi outside the submitted work. NL received honoraria to her institution from GSK, INSMED, AN2 Therapeutics outside the submitted work and a travel grant from Pfizer. Funding Information: The study was supported by a Swiss National Science Foundation Ambizione fellowship (PZ00P3_185923) granted to M Goutaki. The authors participate in the BEAT-PCD (Better Experimental Approaches to Treat Primary Ciliary Dyskinesia) clinical research collaboration, supported by the European Respiratory Society, and most centers participate in the ERN-LUNG (European Reference Network on rare respiratory diseases) PCD core.",

year = "2023",

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doi = "https://doi.org/10.21053/ceo.2023.01130",

language = "English",

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pages = "407--412",

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Lam, YT, Papon, J-F, Alexandru, M, Anagiotos, A, Armengot, M, Boon, M, Burgess, A, Caversaccio, N, Crowley, S, Dheyauldeen, SAD, Emiralioglu, N, Erdem, E, van Gogh, C, Gokdemir, Y, Gunaydın, O, Haarman, EG, Harris, A, Hayn, I, Ismail-Koch, H, Karadag, B, Kempeneers, CL, Kim, S, Lorent, N, Ozcelik, U, Pioch, C, Poirrier, A-LML, Reula, A, Roehmel, J, Yiallouros, P & on behalf of the EPIC-PCD team 2023, 'Lack of Correlation of Sinonasal and Otologic Reported Symptoms With Objective Measurements Among Patients With Primary Ciliary Dyskinesia: An International Study', Clinical and Experimental Otorhinolaryngology, vol. 16, no. 4, pp. 407-412. https://doi.org/10.21053/ceo.2023.01130

Lack of Correlation of Sinonasal and Otologic Reported Symptoms With Objective Measurements Among Patients With Primary Ciliary Dyskinesia: An International Study. / Lam, Yin Ting; Papon, Jean-François; Alexandru, Mihaela et al.
In: Clinical and Experimental Otorhinolaryngology, Vol. 16, No. 4, 01.11.2023, p. 407-412.

Research output: Contribution to journal › Article › Academic › peer-review

TY - JOUR

T1 - Lack of Correlation of Sinonasal and Otologic Reported Symptoms With Objective Measurements Among Patients With Primary Ciliary Dyskinesia

T2 - An International Study

AU - Lam, Yin Ting

AU - Papon, Jean-François

AU - Alexandru, Mihaela

AU - Anagiotos, Andreas

AU - Armengot, Miguel

AU - Boon, Mieke

AU - Burgess, Andrea

AU - Caversaccio, Nathalie

AU - Crowley, Suzanne

AU - Dheyauldeen, Sinan Ahmed D.

AU - Emiralioglu, Nagehan

AU - Erdem, Ela

AU - van Gogh, Christine

AU - Gokdemir, Yasemin

AU - Gunaydın, Onder

AU - Haarman, Eric G.

AU - Harris, Amanda

AU - Hayn, Isolde

AU - Ismail-Koch, Hasnaa

AU - Karadag, Bulent

AU - Kempeneers, C. line

AU - Kim, Sookyung

AU - Lorent, Natalie

AU - Ozcelik, Ugur

AU - Pioch, Charlotte

AU - Poirrier, Anne-Lise M. L.

AU - Reula, Ana

AU - Roehmel, Jobst

AU - Yiallouros, Panayiotis

AU - on behalf of the EPIC-PCD team

AU - Goutaki, Myrofora

N1 - Funding Information: JFP reports personal fees from Sanofi, GSK, Medtronic and ALK outside the submitted work. MB reports grants from Forton grant (King Baudouin Foundation) 2020-J1810150-217926 Cystic fibrosis research and personal fees from Vertex outside the submitted work. JR received grants and clinical study rec-ompensations from Vertex, INSMED, Medical Research Council/ UK, BMBF, Mukoviszidose Institut outside the submitted work. ALMLP received speaker honorarium from GSK and Sanofi outside the submitted work. NL received honoraria to her institution from GSK, INSMED, AN2 Therapeutics outside the submitted work and a travel grant from Pfizer. Funding Information: The study was supported by a Swiss National Science Foundation Ambizione fellowship (PZ00P3_185923) granted to M Goutaki. The authors participate in the BEAT-PCD (Better Experimental Approaches to Treat Primary Ciliary Dyskinesia) clinical research collaboration, supported by the European Respiratory Society, and most centers participate in the ERN-LUNG (European Reference Network on rare respiratory diseases) PCD core.

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U2 - https://doi.org/10.21053/ceo.2023.01130

DO - https://doi.org/10.21053/ceo.2023.01130

M3 - Article

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SN - 1976-8710

VL - 16

SP - 407

EP - 412

JO - Clinical and Experimental Otorhinolaryngology

JF - Clinical and Experimental Otorhinolaryngology

IS - 4

ER -

Lack of Correlation of Sinonasal and Otologic Reported Symptoms With Objective Measurements Among Patients With Primary Ciliary Dyskinesia: An International Study

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