TY - JOUR
T1 - Diversity in Advance Care Planning and End-Of-Life Conversations
T2 - Discourses of Healthcare Professionals and Researchers
AU - Kröger, Charlotte
AU - Uysal-Bozkir, Özgül
AU - Peters, Mike J. L.
AU - van der Plas, Annicka G. M.
AU - Widdershoven, Guy A. M.
AU - Muntinga, Maaike E.
N1 - Publisher Copyright: © The Author(s) 2022.
PY - 2022
Y1 - 2022
N2 - To meet the end-of-life needs of all patients, ongoing conversations about values and preferences regarding end-of-life care are essential. Aspects of social identity are associated with disparities in end-of-life care outcomes. Therefore, accounting for patient diversity in advance care planning and end-of-life conversations is important for equitable end-of-life practices. We conducted 16 semi-structured interviews to explore how Dutch healthcare professionals and researchers conceptualized diversity in advance care planning and end-of-life conversations and how they envision diversity-responsive end-of-life care and research. Using thematic discourse analysis, we identified five ‘diversity discourses’: the categorical discourse; the diversity as a determinant discourse; the diversity in norms and values discourse; the everyone is unique discourse, and the anti-essentialist discourse. These discourses may have distinct implications for diversity-responsive end-of-life conversations, care and research. Awareness and reflection on these discourses may contribute to more inclusive end-of-life practices.
AB - To meet the end-of-life needs of all patients, ongoing conversations about values and preferences regarding end-of-life care are essential. Aspects of social identity are associated with disparities in end-of-life care outcomes. Therefore, accounting for patient diversity in advance care planning and end-of-life conversations is important for equitable end-of-life practices. We conducted 16 semi-structured interviews to explore how Dutch healthcare professionals and researchers conceptualized diversity in advance care planning and end-of-life conversations and how they envision diversity-responsive end-of-life care and research. Using thematic discourse analysis, we identified five ‘diversity discourses’: the categorical discourse; the diversity as a determinant discourse; the diversity in norms and values discourse; the everyone is unique discourse, and the anti-essentialist discourse. These discourses may have distinct implications for diversity-responsive end-of-life conversations, care and research. Awareness and reflection on these discourses may contribute to more inclusive end-of-life practices.
KW - advance care planning
KW - discourses
KW - diversity
KW - end-of-life care
KW - end-of-life conversations
KW - equity
UR - https://www.scopus.com/inward/record.uri?partnerID=HzOxMe3b&scp=85138296680&origin=inward
U2 - https://doi.org/10.1177/00302228221126257
DO - https://doi.org/10.1177/00302228221126257
M3 - Article
SN - 1541-3764
JO - OMEGA - Journal of Death and Dying
JF - OMEGA - Journal of Death and Dying
ER -