TY - JOUR
T1 - How should decision aids be used during counseling to help patients who are "genetically at risk"?
AU - Evans, Natalie
AU - Metselaar, Suzanne
AU - van el, Carla
AU - Hallowell, Nina
AU - Widdershoven, Guy
PY - 2019/1/1
Y1 - 2019/1/1
N2 - People with genetic predispositions to disease are faced with uncertainty about whether, when, and to what extent an illness will actually develop. This prognostic uncertainty, combined with knowledge that preventative interventions (eg, risk-reducing surgeries for familial cancer syndromes) could significantly affect people's lives, renders prevention decisions especially challenging. This article illuminates ethical questions about the use of decision aids for people with genetic predispositions and calls for approaching individual decisions in light of ongoing communication and reflection about a person's life goals and values.
AB - People with genetic predispositions to disease are faced with uncertainty about whether, when, and to what extent an illness will actually develop. This prognostic uncertainty, combined with knowledge that preventative interventions (eg, risk-reducing surgeries for familial cancer syndromes) could significantly affect people's lives, renders prevention decisions especially challenging. This article illuminates ethical questions about the use of decision aids for people with genetic predispositions and calls for approaching individual decisions in light of ongoing communication and reflection about a person's life goals and values.
UR - https://www.scopus.com/inward/record.uri?partnerID=HzOxMe3b&scp=85073007219&origin=inward
U2 - https://doi.org/10.1001/amajethics.2019.865
DO - https://doi.org/10.1001/amajethics.2019.865
M3 - Article
C2 - 31651386
SN - 2376-6980
VL - 21
SP - 865
EP - 872
JO - AMA Journal of Ethics
JF - AMA Journal of Ethics
IS - 10
ER -