Huntington's disease outpatient clinic for functional diagnosis and treatment: Coming to consensus: How long term care facility procedures complement specialist diagnosis and treatment

Ruth Veenhuizen, Hanneke Nijsten, Paul van Roosmalen, Karen Lammertsen, Tom Stor, Lia de Jager, Jesseke de Man, Rina van der Doelen, Karin Landa, Vera Grond, Joyce Heffels, Rinske Groenewoud, Luce Rovers, Christian Bakker, Saskia Leiwakabessy, Dirk van der Wedden, Jacqueline van Blitterswijk, Dieuwke van den Bosch

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5 Citations (Scopus)


Huntington's disease (HD) patients and families deserve expert treatment and care throughout their lives, but uniformity in functional diagnosis and treatment was lacking. In the aim of reaching this uniformity on day-to-day treatment and care offered by multidisciplinary outreach teams from Dutch long term care facilities for ambulatory HD patients, a consensus trajectory was started to harmonise our care programme with international standards and within the country. The consensus statements, given as supplementary material, should lead to expert treatment and care for HD families throughout the Netherlands and this manuscript should contribute and revitalise a global discussion on standards of treatment and care.
Original languageEnglish
Pages (from-to)189-191
JournalJournal of Huntington's Disease
Issue number2
Publication statusPublished - 2018

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