TY - JOUR
T1 - Known in the nursing home
T2 - development and evaluation of a digital person-centered artistic photo-activity intervention to promote social interaction between residents with dementia, and their formal and informal carers
AU - Tan, Josephine Rose Orejana
AU - Boersma, Petra
AU - Ettema, Teake P
AU - Aëgerter, Laurence
AU - Gobbens, Robbert
AU - Stek, Max L
AU - Dröes, Rose-Marie
N1 - Funding Information: The study is funded by the EU Marie Sklodowska-Curie Innovative Training Network (ITN) Action programme (DISTINCT; 2020-MSCA-ITN 2018, under grant agreement number 813196), the RCOAK Foundation, Foundation Hofje Codde & Van Beresteyn, VU University medical center and Inholland University of Applied Sciences. VUmc and Foundation for Support VCVGZ covered the costs of the researchers and the professor/project lead, Inholland provided co-supervision and training to students for data collection, while RCOAK Foundation and Foundation Hofje Codde & Van Beresteyn covered the costs for the development of the digital Photo-Activity intervention. Publisher Copyright: © 2022, The Author(s).
PY - 2022/12/1
Y1 - 2022/12/1
N2 - BACKGROUND: To address the lack of social interaction and meaningful activities for persons with dementia (PWD) in nursing homes an artistic Photo-Activity was designed. The present study aims to develop a digital version of the Photo-Activity and to investigate its implementation and impact on nursing home residents with advanced dementia, and their (in)formal carers.METHODS: First, within a user-participatory design, a digital-app version of the Photo-Activity will be developed and pilot-tested, in co-creation with (in)formal carers and PWD. Next, the feasibility and effectiveness of the Photo-Activity versus a control activity will be explored in a randomized controlled trial with nursing home residents (N=90), and their (in)formal carers. Residents will be offered the Photo-Activity or the control activity by (in)formal carers during one month. Measurements will be conducted by independent assessors at baseline (T0), after one month (T1) and at follow up, two weeks after T1 (T2). Qualitative and quantitative methods will be used to investigate the effects of the intervention on mood, social interaction and quality of life of the PWD, sense of competence of informal carers, empathy and personal attitude of the formal carers, and quality of the relationship between the PWD, and their (in)formal carers. In addition, a process evaluation will be carried out by means of semi-structured interviews with the participating residents and (in)formal carers. Finally, an implementation package based on the process evaluation will be developed, allowing the scaling up of the intervention to other care institutions.DISCUSSION: Results of the trial will be available for dissemination by Spring 2023. The digital Photo-Activity is expected to promote meaningful connections between the resident with dementia, and their (in)formal carers through the facilitation of person-centered conversations.TRIAL REGISTRATION: Netherlands Trial Register: NL9219 ; registered (21 January 2021); NTR (trialregister.nl).
AB - BACKGROUND: To address the lack of social interaction and meaningful activities for persons with dementia (PWD) in nursing homes an artistic Photo-Activity was designed. The present study aims to develop a digital version of the Photo-Activity and to investigate its implementation and impact on nursing home residents with advanced dementia, and their (in)formal carers.METHODS: First, within a user-participatory design, a digital-app version of the Photo-Activity will be developed and pilot-tested, in co-creation with (in)formal carers and PWD. Next, the feasibility and effectiveness of the Photo-Activity versus a control activity will be explored in a randomized controlled trial with nursing home residents (N=90), and their (in)formal carers. Residents will be offered the Photo-Activity or the control activity by (in)formal carers during one month. Measurements will be conducted by independent assessors at baseline (T0), after one month (T1) and at follow up, two weeks after T1 (T2). Qualitative and quantitative methods will be used to investigate the effects of the intervention on mood, social interaction and quality of life of the PWD, sense of competence of informal carers, empathy and personal attitude of the formal carers, and quality of the relationship between the PWD, and their (in)formal carers. In addition, a process evaluation will be carried out by means of semi-structured interviews with the participating residents and (in)formal carers. Finally, an implementation package based on the process evaluation will be developed, allowing the scaling up of the intervention to other care institutions.DISCUSSION: Results of the trial will be available for dissemination by Spring 2023. The digital Photo-Activity is expected to promote meaningful connections between the resident with dementia, and their (in)formal carers through the facilitation of person-centered conversations.TRIAL REGISTRATION: Netherlands Trial Register: NL9219 ; registered (21 January 2021); NTR (trialregister.nl).
KW - Dementia
KW - artistic intervention
KW - nursing homes
KW - photos
KW - psychosocial intervention
KW - tablet computer
UR - http://www.scopus.com/inward/record.url?scp=85122724159&partnerID=8YFLogxK
U2 - https://doi.org/10.1186/s12877-021-02632-w
DO - https://doi.org/10.1186/s12877-021-02632-w
M3 - Article
C2 - 34991472
SN - 1471-2318
VL - 22
SP - 25
JO - BMC geriatrics
JF - BMC geriatrics
IS - 1
M1 - 25
ER -