Outcomes of the first global multidisciplinary consensus meeting including persons living with obesity to standardize patient-reported outcome measurement in obesity treatment research

Claire E. E. de Vries, Caroline B. Terwee, May Al Nawas, Bart A. van Wagensveld, Ignace M. C. Janssen, Ronald S. L. Liem, Simon W. Nienhuijs, Ricardo V. Cohen, Elisabeth F. C. van Rossum, Wendy A. Brown, Amir A. Ghaferi, Johan Ottosson, Karen D. Coulman, Tarissa B. Z. Petry, Stephanie Sogg, Lisa West-Smith, Jason C. G. Halford, Ximena Ramos Salas, John B. Dixon, Salman Al-SabahWei-Jei Lee, John Roger Andersen, Stuart W. Flint, Maarten M. Hoogbergen, Brooke Backman, Ellen Govers, Nadya Isack, Caroline Clay, Susie Birney, Maureen Gunn, Paul Masterson, Audrey Roberts, Jacky Nesbitt, Riccardo Meloni, Sarah le Brocq, Sandra de Blaeij, Christina Kraaijveld, Floor van der Steen, Bibian Visser, Petra Hamers, Valerie M. Monpellier

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Abstract

Quality of life is a key outcome that is not rigorously measured in obesity treatment research due to the lack of standardization of patient-reported outcomes (PROs) and PRO measures (PROMs). The S.Q.O.T. initiative was founded to Standardize Quality of life measurement in Obesity Treatment. A first face-to-face, international, multidisciplinary consensus meeting was conducted to identify the key PROs and preferred PROMs for obesity treatment research. It comprised of 35 people living with obesity (PLWO) and healthcare providers (HCPs). Formal presentations, nominal group techniques, and modified Delphi exercises were used to develop consensus-based recommendations. The following eight PROs were considered important: self-esteem, physical health/functioning, mental/psychological health, social health, eating, stigma, body image, and excess skin. Self-esteem was considered the most important PRO, particularly for PLWO, while physical health was perceived to be the most important among HCPs. For each PRO, one or more PROMs were selected, except for stigma. This consensus meeting was a first step toward standardizing PROs (what to measure) and PROMs (how to measure) in obesity treatment research. It provides an overview of the key PROs and a first selection of the PROMs that can be used to evaluate these PROs.
Original languageEnglish
Article numbere13452
JournalObesity Reviews
Volume23
Issue number8
Early online date2022
DOIs
Publication statusPublished - Aug 2022

Keywords

  • obesity treatment
  • patient-reported outcome measures
  • patient-reported outcomes
  • quality of life

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