Parents’ tacit knowledge of their child with profound intellectual and multiple disabilities: A qualitative study

Kasper Kruithof, Maartje Hoogesteyns, Ilse Zaal-Schuller, Sylvia Huisman, Dick Willems, Appolonia Nieuwenhuijse

Research output: Contribution to journalArticleAcademicpeer-review

Abstract

Background: Parents’ tacit knowledge plays an important role in the care of persons with profound intellectual and multiple disabilities (PIMD). As little is known about its nature and use, we aimed to explore this parental tacit knowledge. Method: We conducted semi-structured interviews with parents (n = 11) about their tacit knowledge of their child, based upon video recordings they made of their child’s behaviour, and analysed the data thematically. Results: Parents described their tacit knowledge as the capacity to read their child’s subtle signs, or to sense and “just know” their child’s situation. They had developed this knowledge because of their shared history of proximity and interaction and emphasised that it was crucial in ensuring their children’s needs are met. Conclusions: We describe how parents’ tacit knowledge contributes to “good care” for persons with PIMD, interpret the implications for (medical) care practice, and discuss ways to deal with its limitations.
Original languageEnglish
JournalJOURNAL OF INTELLECTUAL & DEVELOPMENTAL DISABILITY
Early online date2024
DOIs
Publication statusE-pub ahead of print - 2024

Keywords

  • care
  • caregivers
  • experiential knowledge
  • parents
  • profound intellectual and multiple disabilities
  • tacit knowledge

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