TY - JOUR
T1 - Participation of adults with visual and severe or profound intellectual disabilities
T2 - Definition and operationalization
AU - Hanzen, Gineke
AU - van Nispen, Ruth M.A.
AU - van der Putten, Annette A.J.
AU - Waninge, Aly
PY - 2017/2/1
Y1 - 2017/2/1
N2 - Background The available opinions regarding participation do not appear to be applicable to adults with visual and severe or profound intellectual disabilities (VSPID). Because a clear definition and operationalization are lacking, it is difficult for support professionals to give meaning to participation for adults with VSPID. Aims The purpose of the present study was to develop a definition and operationalization of the concept of participation of adults with VSPID. Methods Parents or family members, professionals, and experts participated in an online concept mapping procedure. This procedure includes generating statements, clustering them, and rating their importance. The data were analyzed quantitatively using multidimensional scaling and qualitatively with triangulation. Results A total of 53 participants generated 319 statements of which 125 were clustered and rated. The final cluster map of the statements contained seven clusters: (1) Experience and discover; (2) Inclusion; (3) Involvement; (4) Leisure and recreation; (5) Communication and being understood; (6) Social relations; and (7) Self-management and autonomy. The average importance rating of the statements varied from 6.49 to 8.95. A definition of participation of this population was developed which included these seven clusters. Conclusions The combination of the developed definition, the clusters, and the statements in these clusters, derived from the perceptions of parents or family members, professionals, and experts, can be employed to operationalize the construct of participation of adults with VSPID. This operationalization supports professionals in their ability to give meaning to participation in these adults. Future research will focus on using the operationalization as a checklist of participation for adults with VSPID.
AB - Background The available opinions regarding participation do not appear to be applicable to adults with visual and severe or profound intellectual disabilities (VSPID). Because a clear definition and operationalization are lacking, it is difficult for support professionals to give meaning to participation for adults with VSPID. Aims The purpose of the present study was to develop a definition and operationalization of the concept of participation of adults with VSPID. Methods Parents or family members, professionals, and experts participated in an online concept mapping procedure. This procedure includes generating statements, clustering them, and rating their importance. The data were analyzed quantitatively using multidimensional scaling and qualitatively with triangulation. Results A total of 53 participants generated 319 statements of which 125 were clustered and rated. The final cluster map of the statements contained seven clusters: (1) Experience and discover; (2) Inclusion; (3) Involvement; (4) Leisure and recreation; (5) Communication and being understood; (6) Social relations; and (7) Self-management and autonomy. The average importance rating of the statements varied from 6.49 to 8.95. A definition of participation of this population was developed which included these seven clusters. Conclusions The combination of the developed definition, the clusters, and the statements in these clusters, derived from the perceptions of parents or family members, professionals, and experts, can be employed to operationalize the construct of participation of adults with VSPID. This operationalization supports professionals in their ability to give meaning to participation in these adults. Future research will focus on using the operationalization as a checklist of participation for adults with VSPID.
KW - Concept mapping
KW - Participation
KW - Severe or profound intellectual disabilities
KW - Visual disability
UR - http://www.scopus.com/inward/record.url?scp=85008388748&partnerID=8YFLogxK
U2 - https://doi.org/10.1016/j.ridd.2016.12.017
DO - https://doi.org/10.1016/j.ridd.2016.12.017
M3 - Article
C2 - 28064027
SN - 0891-4222
VL - 61
SP - 95
EP - 107
JO - Research in developmental disabilities
JF - Research in developmental disabilities
ER -