@article{572d4a41692e4e848dd1fd5f29fa1265,
title = "Patients{\textquoteright} and Healthcare Professionals{\textquoteright} Perspectives on Better Use of Patient-Reported Outcome Measures in Head and Neck Cancer",
abstract = "Objectives: Patients with head and neck cancer (HNC) are often highly affected by disease and treatment, resulting in impaired physical functioning and quality of life. Therefore, evaluation of patients{\textquoteright} psychosocial and functional outcomes can be facilitated by patient-reported outcome measures (PROMs). By providing the patients{\textquoteright} own perspectives, PROMs are crucial to improving patient-centered care. This study aimed to improve understanding of the perceived value of PROMs in HNC care and how to optimize their clinical value based on patients{\textquoteright} and multidisciplinary healthcare professionals{\textquoteright} (HCPs) perspectives. Methods: Population-based surveys among patients with HNC through their patient association and among HCPs nationwide through the Dutch Head and Neck Audit. Results: A total of 54 patients and 40 multidisciplinary HCPs from all 14 nationwide HNC centers (100%) responded. For patients, the most important element of patient-reported outcome collection systems was including a call to action for those with worse-than-average scores (28%), whereas clinicians found discussing scores during clinical visits the most important (39%). Although 16% of clinicians found short completion time the most important element, none of the patients selected completion time as most important. Additionally, 17% of patients stated completion time was not an issue, provided clinicians would use the outcomes for clinical purposes. Conclusions: Although patients and clinicians acknowledged the value of patient-reported outcomes, patients would like to be more involved in the clinical implications of their outcomes. Enhancing patients{\textquoteright} involvement by a call to action and providing feedback on their scores during outpatient clinic visits may improve the clinical value of PROMs.",
keywords = "head and neck cancer, implementation research, patient-reported outcomes, quality of care, quality registries",
author = "{de Jel}, {Dominique V. C.} and Young-Afat, {Danny A.} and Ooms-Renckens, {Marleen M.} and Smeele, {Ludi E.} and Rakhorst, {Hinne A.} and {DHNA study group} and Hendrickx, {J. J.} and Hoebers, {F. J. P.} and Speksnijder, {C. M.} and Witjes, {M. J. H.} and H. Ghaeminia and M. Lacko and {Baatenburg de Jong}, {R. J.} and Takes, {R. P.} and {van Es}, {R. J. J.} and Verschuur, {H. P.} and Jansen, {J. C.} and Vrieze, {O. Hamming} and {van Bemmel}, {A. J. M.} and Schwandt, {L. Q.}",
note = "Funding Information: The authors thank all representatives and members of the Dutch Head and Neck Patient Society (the PVHH) and members of the Clinical Audit Board of the Dutch Head and Neck Audit and their colleagues for participating. DHNA study group contributers: Drs J.J Hendrickx, Department of Otolaryngology - Head and Neck Surgery Amsterdam University Mecical Center, VUmc, Amsterdam, The Netherlands; Dr F.J.P. Hoebers, Department of Radiation Oncology (MAASTRO), GROW – School for Oncology and Developmental Biology, Maastricht, The Netherlands; Dr C.M. Speksnijder, Department of Head and Neck Surgical Oncology, Julius Center for Health Sciences and Primary Care, University Medical Centre Utrecht, Utrecht University, Utrecht, The Netherlands; Prof Dr M.J.H. Witjes, Department of Oral and Maxillofacial Surgery, University Medical Center Groningen, Groningen, The Netherlands; Dr H. Ghaeminia, Department of Oral and Maxillofacial Surgery, Rijnstate, Arnhem, The Netherlands; Dr M. Lacko, Department of Otolaryngology - Head and Neck Surgery, Maastricht University Medical Center, Maastricht, The Netherlands; Prof Dr R.J. Baatenburg de Jong, Department of Otolaryngology - Head and Neck Surgery, Erasmus Medical Center, Rotterdam, The Netherlands; Prof Dr R.P. Takes, Department of Otolaryngology - Head and Neck Surgery, Radboud University Medical Center, Nijmegen, The Netherlands; Dr R.J.J. van Es, Department of Oral and Maxillofacial Surgery, University Medical Center Utrecht, Utrecht, The Netherlands; Dr H.P. Verschuur, Department of Otolaryngology - Head and Neck Surgery, Haaglanden Medical Center, Den Haag, The Netherlands; Prof Dr J.C. Jansen, Department of Otolaryngology - Head and Neck Surgery, Leiden University Medical Center, Leiden, The Netherlands; O. Hamming Vrieze, Department of Radiation Oncology, Netherlands Cancer Institute – Antoni van Leeuwenhoek, Amsterdam, The Netherlands; A.J.M. van Bemmel, Department of Otolaryngology - Head and Neck Surgery, Medical Spectrum Twente, Enschede, The Netherlands; Dr L.Q. Schwandt, Department of Otolaryngology - Head and Neck Surgery, Medical Center Leeuwarden, Leeuwarden, The Netherlands. Publisher Copyright: {\textcopyright} 2023",
year = "2023",
month = aug,
doi = "https://doi.org/10.1016/j.jval.2023.04.009",
language = "English",
volume = "26",
pages = "1210--1216",
journal = "Value in Health",
issn = "1098-3015",
publisher = "Elsevier Limited",
number = "8",
}