TY - JOUR
T1 - Physician-assisted dying for children is conceivable for most Dutch paediatricians, irrespective of the patient's age or competence to decide
AU - Bolt, Eva Elizabeth
AU - Flens, Eva Quirien
AU - Pasman, H. Roeline Willemijn
AU - Willems, Dick
AU - Onwuteaka-Philipsen, Bregje Dorien
PY - 2017/4/1
Y1 - 2017/4/1
N2 - Aim: Paediatricians caring for severely ill children may receive requests for physician-assisted dying (PAD). Dutch euthanasia law only applies to patients over 12 who make well-considered requests. These limitations have been widely debated, but little is known about paediatricians' positions on PAD. We explored the situations in which paediatricians found PAD conceivable and described the roles of the patient and parents, the patient's age and their life expectancy. Methods: We sent a questionnaire to a national sample of 276 Dutch paediatricians and carried out semi-structured interviews with eight paediatricians. Results: The response rate was 62%. Most paediatricians said performing PAD on request was conceivable (81%), conceivability was independent of the patient's age and whether the patient or parent(s) requested it. The paediatricians interviewed felt a duty to relieve suffering, irrespective of the patient's age or competency to decide. When this was not possible through palliative care, PAD was seen as an option for all patients who were suffering unbearably, although some paediatricians saw parental agreement and reduced life expectancy as prerequisites. Conclusion: Most Dutch paediatricians felt PAD was conceivable, even under the age of 12 if requested by the parents. They seemed driven by a sense of duty to relieve suffering.
AB - Aim: Paediatricians caring for severely ill children may receive requests for physician-assisted dying (PAD). Dutch euthanasia law only applies to patients over 12 who make well-considered requests. These limitations have been widely debated, but little is known about paediatricians' positions on PAD. We explored the situations in which paediatricians found PAD conceivable and described the roles of the patient and parents, the patient's age and their life expectancy. Methods: We sent a questionnaire to a national sample of 276 Dutch paediatricians and carried out semi-structured interviews with eight paediatricians. Results: The response rate was 62%. Most paediatricians said performing PAD on request was conceivable (81%), conceivability was independent of the patient's age and whether the patient or parent(s) requested it. The paediatricians interviewed felt a duty to relieve suffering, irrespective of the patient's age or competency to decide. When this was not possible through palliative care, PAD was seen as an option for all patients who were suffering unbearably, although some paediatricians saw parental agreement and reduced life expectancy as prerequisites. Conclusion: Most Dutch paediatricians felt PAD was conceivable, even under the age of 12 if requested by the parents. They seemed driven by a sense of duty to relieve suffering.
KW - Dutch Euthanasia Law
KW - Euthanasia
KW - Life expectancy
KW - Physician-assisted dying
KW - Suffering
KW - Terminally ill children
UR - http://www.scopus.com/inward/record.url?scp=85006412410&partnerID=8YFLogxK
U2 - https://doi.org/10.1111/apa.13620
DO - https://doi.org/10.1111/apa.13620
M3 - Article
C2 - 27727473
SN - 0803-5253
VL - 106
SP - 668
EP - 675
JO - Acta Paediatrica, International Journal of Paediatrics
JF - Acta Paediatrica, International Journal of Paediatrics
IS - 4
ER -