Priorities and preferences for care of people with multiple chronic conditions

Mieke Rijken; René Stüssgen; Chantal Leemrijse; Mieke J. L. Bogerd; Joke C. Korevaar

doi:https://doi.org/10.1111/hex.13262

Priorities and preferences for care of people with multiple chronic conditions

Mieke Rijken, René Stüssgen, Chantal Leemrijse, Mieke J. L. Bogerd, Joke C. Korevaar

Research output: Contribution to journal › Article › Academic › peer-review

3 Citations (Scopus)

Abstract

Background: To guide the development of high-quality care for people with multiple chronic conditions, partners of the European Joint Action CHRODIS developed the Integrated Multimorbidity Care Model. To assess its suitability for improving care for people with multimorbidity in the Netherlands, the model was piloted in a primary care setting with both patients and care providers. Aim: This paper reports on the patient perspective, and aims to explore the priorities, underlying values and preferences for care of people with multimorbidity. Participants and methods: Twenty persons with multimorbidity (selected from general practice registries) participated in a focus group or telephone interview. Subsequently, a questionnaire was completed by 863 persons with multimorbidity registered with 14 general practices. Qualitative data were thematically analysed and quantitative data by means of descriptive statistics. Results: Frequently prioritized elements of care were the use of shared electronic health records, regular comprehensive assessments, self-management support and shared decision making, and care coordination. Preferences for how these elements should be specifically addressed differed according to individual values (eg weighing safety against privacy) and needs (eg ways of coping with multimorbidity). Conclusion: The JA-CHRODIS Integrated Multimorbidity Care Model reflects the priorities and preferences for care of people with multimorbidity in the Netherlands, which supports its relevance to guide the development of person-centred integrated care for people with multiple chronic conditions in the Netherlands. Patient contribution: European patient experts contributed to the development and applicability assessment of the JA-CHRODIS Integrated Multimorbidity Care Model; Dutch patients participated in focus groups, interviews and a survey.

Original language	English
Pages (from-to)	1300-1311
Number of pages	12
Journal	Health expectations
Volume	24
Issue number	4
Early online date	2021
DOIs	https://doi.org/10.1111/hex.13262
Publication status	Published - Aug 2021

Keywords

delivery of health care
health priorities
integrated
multiple chronic conditions
patient preference
primary health care
qualitative research
survey

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@article{cbde2c06e9684bf2be59c60a40f8c63c,

title = "Priorities and preferences for care of people with multiple chronic conditions",

abstract = "Background: To guide the development of high-quality care for people with multiple chronic conditions, partners of the European Joint Action CHRODIS developed the Integrated Multimorbidity Care Model. To assess its suitability for improving care for people with multimorbidity in the Netherlands, the model was piloted in a primary care setting with both patients and care providers. Aim: This paper reports on the patient perspective, and aims to explore the priorities, underlying values and preferences for care of people with multimorbidity. Participants and methods: Twenty persons with multimorbidity (selected from general practice registries) participated in a focus group or telephone interview. Subsequently, a questionnaire was completed by 863 persons with multimorbidity registered with 14 general practices. Qualitative data were thematically analysed and quantitative data by means of descriptive statistics. Results: Frequently prioritized elements of care were the use of shared electronic health records, regular comprehensive assessments, self-management support and shared decision making, and care coordination. Preferences for how these elements should be specifically addressed differed according to individual values (eg weighing safety against privacy) and needs (eg ways of coping with multimorbidity). Conclusion: The JA-CHRODIS Integrated Multimorbidity Care Model reflects the priorities and preferences for care of people with multimorbidity in the Netherlands, which supports its relevance to guide the development of person-centred integrated care for people with multiple chronic conditions in the Netherlands. Patient contribution: European patient experts contributed to the development and applicability assessment of the JA-CHRODIS Integrated Multimorbidity Care Model; Dutch patients participated in focus groups, interviews and a survey.",

keywords = "delivery of health care, health priorities, integrated, multiple chronic conditions, patient preference, primary health care, qualitative research, survey",

author = "Mieke Rijken and Ren{\'e} St{\"u}ssgen and Chantal Leemrijse and Bogerd, {Mieke J. L.} and Korevaar, {Joke C.}",

note = "Funding Information: Funding for this study was provided by the Netherlands Ministry of Health, Welfare and Sport Funding Information: Funding for this study was provided by the Netherlands Ministry of Health, Welfare and Sport The authors thank all people with multimorbidity who participated in the focus groups, telephone interviews or the survey for their valuable contributions to this study. Many thanks also to the GPs and practice staff of De ZOED Schalkwijk / De ZOED Boerhaavewijk and all other participating practices for their efforts in collecting the survey data, and, above all, their willingness and motivation to improve multimorbidity care. The authors also wish to thank the partners of the Joint Actions CHRODIS and CHRODIS+ for the inspiring collaboration over the years to take care for people with multimorbidity in Europe to a higher level, and thank in particular Dr Graziano Onder for his dedicated leadership. Publisher Copyright: {\textcopyright} 2021 The Authors. Health Expectations published by John Wiley & Sons Ltd. Copyright: Copyright 2021 Elsevier B.V., All rights reserved.",

year = "2021",

month = aug,

doi = "https://doi.org/10.1111/hex.13262",

language = "English",

volume = "24",

pages = "1300--1311",

journal = "Health expectations",

issn = "1369-6513",

publisher = "Wiley-Blackwell",

number = "4",

}

TY - JOUR

T1 - Priorities and preferences for care of people with multiple chronic conditions

AU - Rijken, Mieke

AU - Stüssgen, René

AU - Leemrijse, Chantal

AU - Bogerd, Mieke J. L.

AU - Korevaar, Joke C.

N1 - Funding Information: Funding for this study was provided by the Netherlands Ministry of Health, Welfare and Sport Funding Information: Funding for this study was provided by the Netherlands Ministry of Health, Welfare and Sport The authors thank all people with multimorbidity who participated in the focus groups, telephone interviews or the survey for their valuable contributions to this study. Many thanks also to the GPs and practice staff of De ZOED Schalkwijk / De ZOED Boerhaavewijk and all other participating practices for their efforts in collecting the survey data, and, above all, their willingness and motivation to improve multimorbidity care. The authors also wish to thank the partners of the Joint Actions CHRODIS and CHRODIS+ for the inspiring collaboration over the years to take care for people with multimorbidity in Europe to a higher level, and thank in particular Dr Graziano Onder for his dedicated leadership. Publisher Copyright: © 2021 The Authors. Health Expectations published by John Wiley & Sons Ltd. Copyright: Copyright 2021 Elsevier B.V., All rights reserved.

PY - 2021/8

Y1 - 2021/8

N2 - Background: To guide the development of high-quality care for people with multiple chronic conditions, partners of the European Joint Action CHRODIS developed the Integrated Multimorbidity Care Model. To assess its suitability for improving care for people with multimorbidity in the Netherlands, the model was piloted in a primary care setting with both patients and care providers. Aim: This paper reports on the patient perspective, and aims to explore the priorities, underlying values and preferences for care of people with multimorbidity. Participants and methods: Twenty persons with multimorbidity (selected from general practice registries) participated in a focus group or telephone interview. Subsequently, a questionnaire was completed by 863 persons with multimorbidity registered with 14 general practices. Qualitative data were thematically analysed and quantitative data by means of descriptive statistics. Results: Frequently prioritized elements of care were the use of shared electronic health records, regular comprehensive assessments, self-management support and shared decision making, and care coordination. Preferences for how these elements should be specifically addressed differed according to individual values (eg weighing safety against privacy) and needs (eg ways of coping with multimorbidity). Conclusion: The JA-CHRODIS Integrated Multimorbidity Care Model reflects the priorities and preferences for care of people with multimorbidity in the Netherlands, which supports its relevance to guide the development of person-centred integrated care for people with multiple chronic conditions in the Netherlands. Patient contribution: European patient experts contributed to the development and applicability assessment of the JA-CHRODIS Integrated Multimorbidity Care Model; Dutch patients participated in focus groups, interviews and a survey.

AB - Background: To guide the development of high-quality care for people with multiple chronic conditions, partners of the European Joint Action CHRODIS developed the Integrated Multimorbidity Care Model. To assess its suitability for improving care for people with multimorbidity in the Netherlands, the model was piloted in a primary care setting with both patients and care providers. Aim: This paper reports on the patient perspective, and aims to explore the priorities, underlying values and preferences for care of people with multimorbidity. Participants and methods: Twenty persons with multimorbidity (selected from general practice registries) participated in a focus group or telephone interview. Subsequently, a questionnaire was completed by 863 persons with multimorbidity registered with 14 general practices. Qualitative data were thematically analysed and quantitative data by means of descriptive statistics. Results: Frequently prioritized elements of care were the use of shared electronic health records, regular comprehensive assessments, self-management support and shared decision making, and care coordination. Preferences for how these elements should be specifically addressed differed according to individual values (eg weighing safety against privacy) and needs (eg ways of coping with multimorbidity). Conclusion: The JA-CHRODIS Integrated Multimorbidity Care Model reflects the priorities and preferences for care of people with multimorbidity in the Netherlands, which supports its relevance to guide the development of person-centred integrated care for people with multiple chronic conditions in the Netherlands. Patient contribution: European patient experts contributed to the development and applicability assessment of the JA-CHRODIS Integrated Multimorbidity Care Model; Dutch patients participated in focus groups, interviews and a survey.

KW - delivery of health care

KW - health priorities

KW - integrated

KW - multiple chronic conditions

KW - patient preference

KW - primary health care

KW - qualitative research

KW - survey

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DO - https://doi.org/10.1111/hex.13262

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JO - Health expectations

JF - Health expectations

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ER -

Priorities and preferences for care of people with multiple chronic conditions

Abstract

Keywords

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