The BETER survivorship care initiative for Hodgkin lymphoma; Tailored survivorship care for late effects of treatment

Nicky Dekker; Mars B. Van'T Veer; Berthe M.P. Aleman; Flora E. Van Leeuwen; John M.M. Raemaekers; Michael Schaapveld; Annemieke Opstal-Van Winden; Jan Paul De Boer; Cherita Sombroek; Philip Poortmans; Richard Van Der Maazen; P. J.Elly Lugtenburg; Cecile Janus; Ed Noordijk; A. D.G.Stijn Krol; Laurien Daniels; Josée Zijlstra; Otto Meijer; Eefke Petersen; Denise Buter; Roel De Weijer; Judith Roesink; J. C.Hanneke Kluin-Nelemans; Gustaaf Van Imhoff; Floriske De Vries; Max Beijert; Marie José Kersten; Foppe Oldenburger; Edith Dieleman; Harry Schouten; Jacques Borger; Lien Van De Voorde; Karijn Verschueren; Maaike Schippers; Bernard Verbeeten; Francisca Ong; Lucille Dorresteijn; Erik Schimmel; Paul Bouma; Karin Muller; Marnix Lybeert; Ellen Dompeling; Annelies Manenschijn; J. Hanneke Vos-Westerman; Daphne Van Kampen; Michel Dielwart; Ward Posthuma; Lara Böhmer; Liane Te Boome; Hein Visser

The BETER survivorship care initiative for Hodgkin lymphoma; Tailored survivorship care for late effects of treatment

Nicky Dekker, Mars B. Van'T Veer, Berthe M.P. Aleman, Flora E. Van Leeuwen, John M.M. Raemaekers, Michael Schaapveld, Annemieke Opstal-Van Winden, Jan Paul De Boer, Cherita Sombroek, Philip Poortmans, Richard Van Der Maazen, P. J.Elly Lugtenburg, Cecile Janus, Ed Noordijk, A. D.G.Stijn Krol, Laurien Daniels, Josée Zijlstra, Otto Meijer, Eefke Petersen, Denise ButerRoel De Weijer, Judith Roesink, J. C.Hanneke Kluin-Nelemans, Gustaaf Van Imhoff, Floriske De Vries, Max Beijert, Marie José Kersten, Foppe Oldenburger, Edith Dieleman, Harry Schouten, Jacques Borger, Lien Van De Voorde, Karijn Verschueren, Maaike Schippers, Bernard Verbeeten, Francisca Ong, Lucille Dorresteijn, Erik Schimmel, Paul Bouma, Karin Muller, Marnix Lybeert, Ellen Dompeling, Annelies Manenschijn, J. Hanneke Vos-Westerman, Daphne Van Kampen, Michel Dielwart, Ward Posthuma, Lara Böhmer, Liane Te Boome, Hein Visser

Research output: Contribution to journal › Article › Academic › peer-review

Abstract

The Dutch BETER consortium has established a national care infrastructure for Hodgkin lymphoma survivors. 'BETER' [the Dutch word for 'better'] stands for Better care after Hodgkin lymphoma (HL): Evaluation of longterm Treatment Effects and screening Recommendations. The survivorship care focuses on longterm effects of HL treatment. Over 10,000 HL survivors who were treated in the period spanning 19652008 have been identified. As part of the survivorship care initiative, specific BETER outpatient clinics have been set up. A dedicated website, www.beternahodgkin.nl, provides HL survivors with relevant information. The stakeholders of the BETER survivorship care programme aim to achieve an improved healthy life expectancy for patients treated for HL.

Original language	English
Journal	Nederlands Tijdschrift voor Geneeskunde
Volume	160
Issue number	5
Publication status	Published - 1 Jan 2016

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Dekker, N., Van'T Veer, M. B., Aleman, B. M. P., Van Leeuwen, F. E., Raemaekers, J. M. M., Schaapveld, M., Opstal-Van Winden, A., De Boer, J. P., Sombroek, C., Poortmans, P., Van Der Maazen, R., Lugtenburg, P. J. E., Janus, C., Noordijk, E., Krol, A. D. G. S., Daniels, L., Zijlstra, J., Meijer, O., Petersen, E., ... Visser, H. (2016). The BETER survivorship care initiative for Hodgkin lymphoma; Tailored survivorship care for late effects of treatment. Nederlands Tijdschrift voor Geneeskunde, 160(5).

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title = "The BETER survivorship care initiative for Hodgkin lymphoma; Tailored survivorship care for late effects of treatment",

abstract = "The Dutch BETER consortium has established a national care infrastructure for Hodgkin lymphoma survivors. 'BETER' [the Dutch word for 'better'] stands for Better care after Hodgkin lymphoma (HL): Evaluation of longterm Treatment Effects and screening Recommendations. The survivorship care focuses on longterm effects of HL treatment. Over 10,000 HL survivors who were treated in the period spanning 19652008 have been identified. As part of the survivorship care initiative, specific BETER outpatient clinics have been set up. A dedicated website, www.beternahodgkin.nl, provides HL survivors with relevant information. The stakeholders of the BETER survivorship care programme aim to achieve an improved healthy life expectancy for patients treated for HL.",

author = "Nicky Dekker and {Van'T Veer}, {Mars B.} and Aleman, {Berthe M.P.} and {Van Leeuwen}, {Flora E.} and Raemaekers, {John M.M.} and Michael Schaapveld and {Opstal-Van Winden}, Annemieke and {De Boer}, {Jan Paul} and Cherita Sombroek and Philip Poortmans and {Van Der Maazen}, Richard and Lugtenburg, {P. J.Elly} and Cecile Janus and Ed Noordijk and Krol, {A. D.G.Stijn} and Laurien Daniels and Jos{\'e}e Zijlstra and Otto Meijer and Eefke Petersen and Denise Buter and {De Weijer}, Roel and Judith Roesink and Kluin-Nelemans, {J. C.Hanneke} and {Van Imhoff}, Gustaaf and {De Vries}, Floriske and Max Beijert and Kersten, {Marie Jos{\'e}} and Foppe Oldenburger and Edith Dieleman and Harry Schouten and Jacques Borger and {Van De Voorde}, Lien and Karijn Verschueren and Maaike Schippers and Bernard Verbeeten and Francisca Ong and Lucille Dorresteijn and Erik Schimmel and Paul Bouma and Karin Muller and Marnix Lybeert and Ellen Dompeling and Annelies Manenschijn and Vos-Westerman, {J. Hanneke} and {Van Kampen}, Daphne and Michel Dielwart and Ward Posthuma and Lara B{\"o}hmer and {Te Boome}, Liane and Hein Visser",

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Dekker, N, Van'T Veer, MB, Aleman, BMP, Van Leeuwen, FE, Raemaekers, JMM, Schaapveld, M, Opstal-Van Winden, A, De Boer, JP, Sombroek, C, Poortmans, P, Van Der Maazen, R, Lugtenburg, PJE, Janus, C, Noordijk, E, Krol, ADGS, Daniels, L, Zijlstra, J, Meijer, O, Petersen, E, Buter, D, De Weijer, R, Roesink, J, Kluin-Nelemans, JCH, Van Imhoff, G, De Vries, F, Beijert, M, Kersten, MJ, Oldenburger, F, Dieleman, E, Schouten, H, Borger, J, Van De Voorde, L, Verschueren, K, Schippers, M, Verbeeten, B, Ong, F, Dorresteijn, L, Schimmel, E, Bouma, P, Muller, K, Lybeert, M, Dompeling, E, Manenschijn, A, Vos-Westerman, JH, Van Kampen, D, Dielwart, M, Posthuma, W, Böhmer, L, Te Boome, L & Visser, H 2016, 'The BETER survivorship care initiative for Hodgkin lymphoma; Tailored survivorship care for late effects of treatment', Nederlands Tijdschrift voor Geneeskunde, vol. 160, no. 5.

TY - JOUR

T1 - The BETER survivorship care initiative for Hodgkin lymphoma; Tailored survivorship care for late effects of treatment

AU - Dekker, Nicky

AU - Van'T Veer, Mars B.

AU - Aleman, Berthe M.P.

AU - Van Leeuwen, Flora E.

AU - Raemaekers, John M.M.

AU - Schaapveld, Michael

AU - Opstal-Van Winden, Annemieke

AU - De Boer, Jan Paul

AU - Sombroek, Cherita

AU - Poortmans, Philip

AU - Van Der Maazen, Richard

AU - Lugtenburg, P. J.Elly

AU - Janus, Cecile

AU - Noordijk, Ed

AU - Krol, A. D.G.Stijn

AU - Daniels, Laurien

AU - Zijlstra, Josée

AU - Meijer, Otto

AU - Petersen, Eefke

AU - Buter, Denise

AU - De Weijer, Roel

AU - Roesink, Judith

AU - Kluin-Nelemans, J. C.Hanneke

AU - Van Imhoff, Gustaaf

AU - De Vries, Floriske

AU - Beijert, Max

AU - Kersten, Marie José

AU - Oldenburger, Foppe

AU - Dieleman, Edith

AU - Schouten, Harry

AU - Borger, Jacques

AU - Van De Voorde, Lien

AU - Verschueren, Karijn

AU - Schippers, Maaike

AU - Verbeeten, Bernard

AU - Ong, Francisca

AU - Dorresteijn, Lucille

AU - Schimmel, Erik

AU - Bouma, Paul

AU - Muller, Karin

AU - Lybeert, Marnix

AU - Dompeling, Ellen

AU - Manenschijn, Annelies

AU - Vos-Westerman, J. Hanneke

AU - Van Kampen, Daphne

AU - Dielwart, Michel

AU - Posthuma, Ward

AU - Böhmer, Lara

AU - Te Boome, Liane

AU - Visser, Hein

PY - 2016/1/1

Y1 - 2016/1/1

N2 - The Dutch BETER consortium has established a national care infrastructure for Hodgkin lymphoma survivors. 'BETER' [the Dutch word for 'better'] stands for Better care after Hodgkin lymphoma (HL): Evaluation of longterm Treatment Effects and screening Recommendations. The survivorship care focuses on longterm effects of HL treatment. Over 10,000 HL survivors who were treated in the period spanning 19652008 have been identified. As part of the survivorship care initiative, specific BETER outpatient clinics have been set up. A dedicated website, www.beternahodgkin.nl, provides HL survivors with relevant information. The stakeholders of the BETER survivorship care programme aim to achieve an improved healthy life expectancy for patients treated for HL.

AB - The Dutch BETER consortium has established a national care infrastructure for Hodgkin lymphoma survivors. 'BETER' [the Dutch word for 'better'] stands for Better care after Hodgkin lymphoma (HL): Evaluation of longterm Treatment Effects and screening Recommendations. The survivorship care focuses on longterm effects of HL treatment. Over 10,000 HL survivors who were treated in the period spanning 19652008 have been identified. As part of the survivorship care initiative, specific BETER outpatient clinics have been set up. A dedicated website, www.beternahodgkin.nl, provides HL survivors with relevant information. The stakeholders of the BETER survivorship care programme aim to achieve an improved healthy life expectancy for patients treated for HL.

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M3 - Article

SN - 0028-2162

VL - 160

JO - Nederlands Tijdschrift voor Geneeskunde

JF - Nederlands Tijdschrift voor Geneeskunde

IS - 5

ER -

The BETER survivorship care initiative for Hodgkin lymphoma; Tailored survivorship care for late effects of treatment

Abstract

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