TY - JOUR
T1 - Huntington's disease outpatient clinic for functional diagnosis and treatment: Coming to consensus: How long term care facility procedures complement specialist diagnosis and treatment
AU - Veenhuizen, Ruth
AU - Nijsten, Hanneke
AU - van Roosmalen, Paul
AU - Lammertsen, Karen
AU - Stor, Tom
AU - de Jager, Lia
AU - de Man, Jesseke
AU - van der Doelen, Rina
AU - Landa, Karin
AU - Grond, Vera
AU - Heffels, Joyce
AU - Groenewoud, Rinske
AU - Rovers, Luce
AU - Bakker, Christian
AU - Leiwakabessy, Saskia
AU - van der Wedden, Dirk
AU - van Blitterswijk, Jacqueline
AU - van den Bosch, Dieuwke
PY - 2018
Y1 - 2018
N2 - Huntington's disease (HD) patients and families deserve expert treatment and care throughout their lives, but uniformity in functional diagnosis and treatment was lacking. In the aim of reaching this uniformity on day-to-day treatment and care offered by multidisciplinary outreach teams from Dutch long term care facilities for ambulatory HD patients, a consensus trajectory was started to harmonise our care programme with international standards and within the country. The consensus statements, given as supplementary material, should lead to expert treatment and care for HD families throughout the Netherlands and this manuscript should contribute and revitalise a global discussion on standards of treatment and care.
AB - Huntington's disease (HD) patients and families deserve expert treatment and care throughout their lives, but uniformity in functional diagnosis and treatment was lacking. In the aim of reaching this uniformity on day-to-day treatment and care offered by multidisciplinary outreach teams from Dutch long term care facilities for ambulatory HD patients, a consensus trajectory was started to harmonise our care programme with international standards and within the country. The consensus statements, given as supplementary material, should lead to expert treatment and care for HD families throughout the Netherlands and this manuscript should contribute and revitalise a global discussion on standards of treatment and care.
UR - https://www.scopus.com/inward/record.uri?partnerID=HzOxMe3b&scp=85048571758&origin=inward
UR - https://www.ncbi.nlm.nih.gov/pubmed/29843250
U2 - https://doi.org/10.3233/JHD-180298
DO - https://doi.org/10.3233/JHD-180298
M3 - Review article
C2 - 29843250
SN - 1879-6397
VL - 7
SP - 189
EP - 191
JO - Journal of Huntington's Disease
JF - Journal of Huntington's Disease
IS - 2
ER -