TY - JOUR
T1 - A disease-specific psychosocial questionnaire for Parkinson's disease caregivers
AU - Spliethoff-Kamminga, Noëlle G. A.
AU - Zwinderman, Aeilko H.
AU - Springer, Machiel P.
AU - Roos, Raymund A. C.
PY - 2003
Y1 - 2003
N2 - Objective To evaluate the "Belastungsfragebogen Parkinson Angehorigen - kurzversion" (BELA-A-k), a questionnaire for measuring psychosocial problems and need for help in Parkinson's disease (PD) caregivers. Methods The "Belastungsfragebogen Parkinson Angehorigen - kurzversion" was translated into Dutch. It consists of 15 items with a 'Bothered by' (Bb) and a 'Need for Help' (NfH) score. The BELA-A-k was tested for cultural differences, relevance and feasibility in a pilot (n = 10). We determined the psychometric properties in a validation study (n = 50) and compared the BELA-A-k with the Sickness Impact Profile, the COOP/WONCA Functional Health Assessment Charts and the Loneliness Questionnaire (de Jong-Gierveld). All questionnaires were administered in person at home, in a prescribed order. Results The BELA-A-k was completed by 60 PD-caregivers. The internal-consistency reliability coefficients for the total 'Bothered by' (0.90) and 'Need for Help' (0.92) scales were excellent. The internal consistency of the subscales exceeded the 0.70 standard except for the 'Bothered by' and 'Need for Help' Social functioning scale (Bb = 0.62; NfH = 0.65) and the Partner-bonding/Family scale (NfH = 0.69). Almost all BELA-A-k subscales correlated highly (P <0.001) with the corresponding scales of the standard quality of life indices. Conclusion The BELA-A-k is a relevant, reliable and valid measure for assessing psychosocial problems and need for help of PD-caregivers
AB - Objective To evaluate the "Belastungsfragebogen Parkinson Angehorigen - kurzversion" (BELA-A-k), a questionnaire for measuring psychosocial problems and need for help in Parkinson's disease (PD) caregivers. Methods The "Belastungsfragebogen Parkinson Angehorigen - kurzversion" was translated into Dutch. It consists of 15 items with a 'Bothered by' (Bb) and a 'Need for Help' (NfH) score. The BELA-A-k was tested for cultural differences, relevance and feasibility in a pilot (n = 10). We determined the psychometric properties in a validation study (n = 50) and compared the BELA-A-k with the Sickness Impact Profile, the COOP/WONCA Functional Health Assessment Charts and the Loneliness Questionnaire (de Jong-Gierveld). All questionnaires were administered in person at home, in a prescribed order. Results The BELA-A-k was completed by 60 PD-caregivers. The internal-consistency reliability coefficients for the total 'Bothered by' (0.90) and 'Need for Help' (0.92) scales were excellent. The internal consistency of the subscales exceeded the 0.70 standard except for the 'Bothered by' and 'Need for Help' Social functioning scale (Bb = 0.62; NfH = 0.65) and the Partner-bonding/Family scale (NfH = 0.69). Almost all BELA-A-k subscales correlated highly (P <0.001) with the corresponding scales of the standard quality of life indices. Conclusion The BELA-A-k is a relevant, reliable and valid measure for assessing psychosocial problems and need for help of PD-caregivers
U2 - https://doi.org/10.1007/s00415-003-0165-6
DO - https://doi.org/10.1007/s00415-003-0165-6
M3 - Article
C2 - 14586595
SN - 0340-5354
VL - 250
SP - 1162
EP - 1168
JO - Journal of neurology
JF - Journal of neurology
IS - 10
ER -