TY - JOUR
T1 - Cancer-related cognitive problems at work: experiences of survivors and professionals
T2 - experiences of survivors and professionals
AU - Klaver, K.M.
AU - Duijts, S.F.A.
AU - Engelhardt, E.G.
AU - Geusgens, C.A.V.
AU - Aarts, M.J.B.
AU - Ponds, R.W.H.M.
AU - van der Beek, A.J.
AU - Schagen, S.B.
N1 - - In Special Issue: Perspectives Of Stakeholders In The Work Participation Of Cancer Survivors. - With supplementary file
PY - 2020/4/1
Y1 - 2020/4/1
N2 - Purpose: Cancer-related cognitive problems (cancer-related cognitive problems) in working cancer survivors are found to affect work outcomes. We aimed to generate in-depth information regarding cancer-related cognitive problems in working cancer survivors, strategies used to cope with cancer-related cognitive problems at work, and needs of cancer survivors and professionals regarding cancer-related cognitive problems at work.Methods: Five focus groups were formed, amongst which three focus groups with cancer survivors (n = 8, n = 7, and n = 8) and two focus groups with professionals (n = 7, n = 8). Thematic analysis of the transcripts was performed to create concepts.Results: Both cancer survivors and professionals confirmed that cancer-related cognitive problems, which occurred in several domains of neurocognitive functioning, affect work functioning. Cancer survivors used several strategies (e.g., applying practical adjustments, re-organization of work, and accepting limitations) to cope with cancer-related cognitive problems at work, as did professionals in their attempt at supporting cancer survivors facing these problems. Various needs of cancer survivors (e.g., supportive care options, acknowledgment by others) and professionals (e.g., improvement of expertise, clarity about referral pathways) regarding cancer-related cognitive problems at work were mentioned.Conclusions: Due to the growing number of working cancer survivors dealing with cancer-related cognitive problems, it is essential to sustain their employability. Therefore, cognitive rehabilitation interventions should be developed, taking functioning at work into account. Knowledge amongst professionals regarding cancer-related cognitive problems, as well as coordination of care for cancer-related cognitive problems, should be improved. Ensuring professional education regarding cancer-related cognitive problems, within both the healthcare and occupational setting, is of utmost importance.Implications for cancer survivors: Support for working cancer survivors who experience cancer-related cognitive problems might increase their employability in the longer term.
AB - Purpose: Cancer-related cognitive problems (cancer-related cognitive problems) in working cancer survivors are found to affect work outcomes. We aimed to generate in-depth information regarding cancer-related cognitive problems in working cancer survivors, strategies used to cope with cancer-related cognitive problems at work, and needs of cancer survivors and professionals regarding cancer-related cognitive problems at work.Methods: Five focus groups were formed, amongst which three focus groups with cancer survivors (n = 8, n = 7, and n = 8) and two focus groups with professionals (n = 7, n = 8). Thematic analysis of the transcripts was performed to create concepts.Results: Both cancer survivors and professionals confirmed that cancer-related cognitive problems, which occurred in several domains of neurocognitive functioning, affect work functioning. Cancer survivors used several strategies (e.g., applying practical adjustments, re-organization of work, and accepting limitations) to cope with cancer-related cognitive problems at work, as did professionals in their attempt at supporting cancer survivors facing these problems. Various needs of cancer survivors (e.g., supportive care options, acknowledgment by others) and professionals (e.g., improvement of expertise, clarity about referral pathways) regarding cancer-related cognitive problems at work were mentioned.Conclusions: Due to the growing number of working cancer survivors dealing with cancer-related cognitive problems, it is essential to sustain their employability. Therefore, cognitive rehabilitation interventions should be developed, taking functioning at work into account. Knowledge amongst professionals regarding cancer-related cognitive problems, as well as coordination of care for cancer-related cognitive problems, should be improved. Ensuring professional education regarding cancer-related cognitive problems, within both the healthcare and occupational setting, is of utmost importance.Implications for cancer survivors: Support for working cancer survivors who experience cancer-related cognitive problems might increase their employability in the longer term.
KW - Adult
KW - Aged
KW - Cancer
KW - Cancer Survivors/psychology
KW - Cognitive Dysfunction/etiology
KW - Cognitive problems
KW - Employability
KW - Employment/psychology
KW - Female
KW - Focus Groups/methods
KW - Focus group
KW - Humans
KW - Male
KW - Middle Aged
KW - Neoplasms/complications
KW - Work
UR - https://pure.uva.nl/ws/files/55596919/11764_2019_830_MOESM1_ESM.docx
UR - http://www.scopus.com/inward/record.url?scp=85076048792&partnerID=8YFLogxK
U2 - https://doi.org/10.1007/s11764-019-00830-5
DO - https://doi.org/10.1007/s11764-019-00830-5
M3 - Article
C2 - 31768861
SN - 1932-2259
VL - 14
SP - 168
EP - 178
JO - Journal of Cancer Survivorship
JF - Journal of Cancer Survivorship
IS - 2
ER -