Chronic fatigue syndromes: real illnesses that people can recover from

Tomas Nordheim Alme, Anna Andreasson, Tarjei T. rre Asprusten, Anne Karen Bakken, Michael B. J. Beadsworth, Birgitte Boye, Per Alf Brodal, Elias Myrstad Brodwall, Kjetil Gundro Brurberg, Ingrid Bugge, Trudie Chalder, Reidar Due, Hege Randi Eriksen, Per Klausen Fink, Signe Agnes Flottorp, Egil Andreas Fors, B. rd Fossli Jensen, Hans Petter Fundingsrud, Paul Garner, Lise Beier HavdalHelene Helgeland, Henrik B. rsting Jacobsen, Georg Espolin Johnson, Martin Jonsjö, Hans Knoop, Live Landmark, Gunvor Launes, Mats Lekander, Hannah Linnros, Elin Lindsäter, Helena Liira, Lina Linnestad, Jon H. vard Loge, Peter Solvoll Lyby, Sadaf Malik, Ulrik Fredrik Malt, Trygve Moe, Anna-Karin Norlin, Maria Pedersen, Siv Elin Pignatiello, Charlotte Ulrikka Rask, Silje Endresen Reme, Gisle Roksund, Markku Sainio, Michael Sharpe, Ruth Foseide Thorkildsen, Betty van Roy, Per Olav Vandvik, Henrik Vogt, Hedda Bratholm Wyller, Vegard Bruun Bratholm Wyller

Research output: Contribution to journalArticleAcademicpeer-review

3 Citations (Scopus)

Abstract

The ‘Oslo Chronic Fatigue Consortium’ consists of researchers and clinicians who question the current narrative that chronic fatigue syndromes, including post-covid conditions, are incurable diseases. Instead, we propose an alternative view, based on research, which offers more hope to patients. Whilst we regard the symptoms of these conditions as real, we propose that they are more likely to reflect the brain's response to a range of biological, psychological, and social factors, rather than a specific disease process. Possible causes include persistent activation of the neurobiological stress response, accompanied by associated changes in immunological, hormonal, cognitive and behavioural domains. We further propose that the symptoms are more likely to persist if they are perceived as threatening, and all activities that are perceived to worsen them are avoided. We also question the idea that the best way to cope with the illness is by prolonged rest, social isolation, and sensory deprivation.Instead, we propose that recovery is often possible if patients are helped to adopt a less threatening understanding of their symptoms and are supported in a gradual return to normal activities. Finally, we call for a much more open and constructive dialogue about these conditions. This dialogue should include a wider range of views, including those of patients who have recovered from them.
Original languageEnglish
Pages (from-to)372-376
Number of pages5
JournalScandinavian journal of primary health care
Volume41
Issue number4
Early online date2023
DOIs
Publication statusPublished - 2023

Keywords

  • Chronic fatigue syndrome
  • Chronic illness narrative
  • Long Covid
  • Multidimensional explanations
  • Myalgic encephalomyelitis
  • Patient-centered care
  • Rehabilitation strategies

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