TY - JOUR
T1 - Developing a database for multicenter evaluation of placenta accreta spectrum
AU - Braun, Thorsten
AU - van Beekhuizen, Heleen J.
AU - Morlando, Maddalena
AU - Morel, Olivier
AU - Stefanovic, Vedran
AU - the International Society for Placenta Accreta Spectrum (IS-PAS)
AU - Al Naimi, Ammar
AU - Bertholdt, Charline
AU - Calda, Pavel
AU - Chalubinski, Kinga M.
AU - Pateisky, Petra
AU - Chantraine, Fredric
AU - Petit, Philippe
AU - Collins, Sally
AU - Duvekot, Johannes J.
AU - Fox, Karin
AU - Gronbeck, Lene
AU - Henrich, Wolfgang
AU - Nonnenmacher, Andreas
AU - Schwickert, Alexander
AU - Martinelli, Pasquale
AU - Mhallem Gziri, Mina
AU - Paavonen, Jorma
AU - Tikkanen, Minna
AU - Rijken, Marcus
AU - Ropacka, Mariola
AU - Strindfors, Gita
AU - Weichert, Alexander
AU - von Weizsäcker, Katharina
N1 - Publisher Copyright: © 2021 The Authors. Acta Obstetricia et Gynecologica Scandinavica published by John Wiley & Sons Ltd on behalf of Nordic Federation of Societies of Obstetrics and Gynecology (NFOG).
PY - 2021/3/1
Y1 - 2021/3/1
N2 - Studies of rare, but complex clinical conditions require multicenter cooperation. The International Society for Placenta accreta spectrum (IS-PAS) have established a secure web-based database to analyze pregnancies complicated by PAS. By repeated in-person meetings of the IS-PAS, a core dataset was established. Then, a custom-made, secure online database, capable of receiving strictly anonymized patient-related textual and imaging data and allowing statistical queries was designed, tested, amended and implemented. Between 2008 and 2019, 14 IS-PAS centers across Europe and one center in the USA contributed data for all their PAS cases, containing pregnancy data for a total of 442 pregnant women. Data were analyzed by a designated data analysis sub-group of the IS-PAS. Center characteristics are presented. Based on experiences with previous versions, our new online database now allows an all-encompassing data collection. It has shown its usefulness in the current analysis project.
AB - Studies of rare, but complex clinical conditions require multicenter cooperation. The International Society for Placenta accreta spectrum (IS-PAS) have established a secure web-based database to analyze pregnancies complicated by PAS. By repeated in-person meetings of the IS-PAS, a core dataset was established. Then, a custom-made, secure online database, capable of receiving strictly anonymized patient-related textual and imaging data and allowing statistical queries was designed, tested, amended and implemented. Between 2008 and 2019, 14 IS-PAS centers across Europe and one center in the USA contributed data for all their PAS cases, containing pregnancy data for a total of 442 pregnant women. Data were analyzed by a designated data analysis sub-group of the IS-PAS. Center characteristics are presented. Based on experiences with previous versions, our new online database now allows an all-encompassing data collection. It has shown its usefulness in the current analysis project.
KW - abnormally invasive placenta
KW - case reporting form
KW - online database
KW - placenta accreta spectrum
UR - http://www.scopus.com/inward/record.url?scp=85101250051&partnerID=8YFLogxK
U2 - https://doi.org/10.1111/aogs.14085
DO - https://doi.org/10.1111/aogs.14085
M3 - Comment/Letter to the editor
C2 - 33811336
SN - 0001-6349
VL - 100
SP - 7
EP - 11
JO - Acta obstetricia et gynecologica Scandinavica
JF - Acta obstetricia et gynecologica Scandinavica
IS - S1
ER -