TY - JOUR
T1 - Development and implementation of a patient reported outcome intervention (QLIC-ON PROfile) in clinical paediatric oncology practice
AU - Engelen, V.
AU - Haverman, L.
AU - Koopman, H.
AU - Schouten-van Meeteren, A.Y.N.
AU - Meijer-van den Bergh, E.
AU - Vrijmoet-Wiersma, J.
AU - van Dijk, E.M.
AU - Last, B.F.
AU - Detmar, S.
AU - Grootenhuis, M.
PY - 2010
Y1 - 2010
N2 - Objective: The use of patient reported outcomes (PRO) in routine clinical practice is becoming increasingly common, but there is limited knowledge about the development and implementation of PRO. The objective of the current paper is to provide a thorough description of the development and implementation of a PRO on health related quality of life (HRQOL) - the QLIC-ON PROfile - in clinical paediatric oncology practice. Methods: The development of the QLIC-ON PROfile is explained by elucidating important choices: the HRQOL instrument, the professional that uses the QLIC-ON PROfile, the optimal form of HRQOL feedback and whether or not a clinically important difference is reported. The description of the implementation of the QLIC-ON PROfile focuses on the education and commitment of the professional that uses the QLIC-ON PROfile. Study design and outcome measures are also elaborated on. Results: Important considerations regarding the development and implementation of PRO interventions are reported. These considerations have also resulted in educational material. Conclusion: Our study adds to current knowledge of PRO research. This paper can be used as a practical guide for researchers and other professionals, who are interested in setting up PRO interventions in any clinical setting. (C) 2010 Elsevier Ireland Ltd. All rights reserved
AB - Objective: The use of patient reported outcomes (PRO) in routine clinical practice is becoming increasingly common, but there is limited knowledge about the development and implementation of PRO. The objective of the current paper is to provide a thorough description of the development and implementation of a PRO on health related quality of life (HRQOL) - the QLIC-ON PROfile - in clinical paediatric oncology practice. Methods: The development of the QLIC-ON PROfile is explained by elucidating important choices: the HRQOL instrument, the professional that uses the QLIC-ON PROfile, the optimal form of HRQOL feedback and whether or not a clinically important difference is reported. The description of the implementation of the QLIC-ON PROfile focuses on the education and commitment of the professional that uses the QLIC-ON PROfile. Study design and outcome measures are also elaborated on. Results: Important considerations regarding the development and implementation of PRO interventions are reported. These considerations have also resulted in educational material. Conclusion: Our study adds to current knowledge of PRO research. This paper can be used as a practical guide for researchers and other professionals, who are interested in setting up PRO interventions in any clinical setting. (C) 2010 Elsevier Ireland Ltd. All rights reserved
U2 - https://doi.org/10.1016/j.pec.2010.02.003
DO - https://doi.org/10.1016/j.pec.2010.02.003
M3 - Article
C2 - 20189747
SN - 0738-3991
VL - 81
SP - 235
EP - 244
JO - Patient education and counseling
JF - Patient education and counseling
IS - 2
ER -
