European Reference Network for rare adult solid cancers, statement and integration to health care systems of member states: a position paper of the ERN EURACAN

TY - JOUR

T1 - European Reference Network for rare adult solid cancers, statement and integration to health care systems of member states

T2 - a position paper of the ERN EURACAN

AU - EURACAN Network

AU - Blay, J. Y.

AU - Casali, P.

AU - Bouvier, C.

AU - Dehais, C.

AU - Galloway, I.

AU - Gietema, J.

AU - Halámková, J.

AU - Hindi, N.

AU - Idbaih, A.

AU - Kinloch, E.

AU - Klümpen, H. J.

AU - Kolarova, T.

AU - Kopeckova, K.

AU - Lovey, J.

AU - Magalhaes, M.

AU - Oselin, K.

AU - Piperno-Neumann, S.

AU - Ravnsbaek, A.

AU - Rogasik, M.

AU - Safwat, A.

AU - Scheipl, S.

AU - Seckl, M.

AU - Taylor, J.

AU - Temnyk, M.

AU - Trama, A.

AU - Urbonas, M.

AU - Wartenberg, M.

AU - Weinman, A.

N1 - Funding Information: We thank the EURACAN national representatives and EURACAN ePAGs, namely James Caldwell, Martyn Caplin, Christelle de la Fouchardiere, Henrik Falconer, Nicolas Girard, Peter Hohenberger, Ellen Kapiteijn, Stephane Lejeune, Javier Martin Broto, Kathy Oliver, H?li Paluste, Uros Smrdel-Skoblar, Pia Vihinen, and Lucjan Wyrwicz for their regular contribution and who sent apologies for not being able to attend this meeting. We also thank Magali Bayssiere (Lyon Ingenierie Projets, France) for her support to the EURACAN coordination team and Sophie Darnis (Centre L?on B?rard) for medical editorial assistance with this manuscript. This work was supported by the European Commission [EURACAN, grant number EC 739521]; JYB: NetSARC+ (INCA and DGOS, no grant number); LYRICAN [grant number INCA-DGOS-INSERM 12563], Association DAM's, Eurosarc [grant number FP7-278742], Fondation ARC (no grant number), Infosarcome, (no grant number), LabEx DEvweCAN [grant number ANR-10-LABX0061], PIA Institut Convergence Fran?ois Rabelais PLAsCAN [grant number PLASCAN, 17-CONV-0002], La Ligue de L'Ain contre le Cancer (no grant number), La Ligue nationale contre le Cancer (no grant number), and RHU4 DEPGYN [grant number ANR-18-RHUS-0009]; JH: MH CZ?DRO [grant number MMCI, 00209805]; RI CZECRIN [grant number LM2018128]. The authors have declared no conflicts of interest. ePAGs: Associazione Italiana Laringectizziati (AILAR), Digestive Cancer Europe (DiCE), European Association of NeuroOncology (EANO), European Cancer Organisation, European Cancer Patient Coalition (ECPC), European Head and Neck Society (EHNS), European Network of Gynaecological Cancer Advocacy Groups (ENGAGe), European Neuroendocrine Tumour Society (ENETS), European Organisation for Research and Treatment of Cancer (EORTC), European Rare Disease Patient Organisation (EURORDIS), European School of Oncology (ESO), European Society of Gynaecological Oncology (ESGO), European Society for Medical Oncology (ESMO), European Society of Surgical Oncology (ESSO), European Society for Radiotherapy and Oncology (ESTRO), Melanoma Patient Network Europe (MPNE); French National Network for the Treatment of Rare Peritoneal Surface Malignancies (RENAPE), Info Sarcomes, International Brain tumour Alliance (IBTA), International Neuroendocrine Cancer Alliance (INCA), Melanoma Info Deutschland (MID), Neuroendocrine Cancer, UK, Salivary Gland Cancer UK (SGC), Sarcoma Patients Euronet (SPAEN), Thyroid Cancer Alliance (TCA), Joint Action on Rare Cancers (JARC), Lyon Ingenierie Projets (LIP), Organisation of European Cancer Institute (OECI), R?seau Tumeurs Thymiques et Cancer (Rythmic), French Sarcoma Group, French Tumour Study Group (GSF-GETO), the NETSARC+ network, LYRICAN, Universit? Claude Bernard Lyon 1 (UCBL), Universita degli studi di Milano (UNIMI). Funding Information: This work was supported by the European Commission [EURACAN, grant number EC 739521 ]; JYB: NetSARC+ (INCA and DGOS, no grant number); LYRICAN [grant number INCA-DGOS-INSERM 12563], Association DAM's, Eurosarc [grant number FP7-278742], Fondation ARC (no grant number), Infosarcome, (no grant number), LabEx DEvweCAN [grant number ANR-10-LABX0061], PIA Institut Convergence François Rabelais PLAsCAN [grant number PLASCAN, 17-CONV-0002], La Ligue de L'Ain contre le Cancer (no grant number), La Ligue nationale contre le Cancer (no grant number), and RHU4 DEPGYN [grant number ANR-18-RHUS-0009]; JH: MH CZ–DRO [grant number MMCI, 00209805]; RI CZECRIN [grant number LM2018128].

PY - 2021/8/1

Y1 - 2021/8/1

UR - http://www.scopus.com/inward/record.url?scp=85117623188&partnerID=8YFLogxK

U2 - https://doi.org/10.1016/j.esmoop.2021.100174

DO - https://doi.org/10.1016/j.esmoop.2021.100174

M3 - Editorial

C2 - 34139485

SN - 2059-7029

VL - 6

JO - ESMO open

JF - ESMO open

IS - 4

M1 - 100174

ER -