TY - GEN
T1 - Factors Influencing Implementation of the Survivorship Passport
T2 - 16th Annual Health Informatics Meets Digital Health Conference, dHealth 2022
AU - Chronaki, Catherine
AU - Charalambous, Eliana
AU - Cangioli, Giorgio
AU - Schreier, G. nter
AU - van den Oever, Selina
AU - van der Pal, Helena
AU - Kremer, Leontien
AU - Uyttebroeck, Anne
AU - van den Bosch, Bart
AU - Trinkunas, Justas
AU - Rascon, Jelena
AU - Ladenstein, Ruth
AU - Düster, Vanessa
AU - Bardi, Edit
AU - Walz, Diana
AU - Filberd, Anna-Liesa
AU - Grabow, Desiree
AU - Langer, Thorsten
AU - Nieto, Adela Cañete
AU - Galán, Antonio J. Orduña
AU - Correcher Palau, Marisa
AU - Cavalca, Giacomo
AU - Haupt, Riccardo
N1 - Funding Information: PanCareSurPass has received funding from EU’s Horizon 2020 R&I programme under GA No 899999. The material presented and views expressed here are the responsibilities of the author(s) only. The European Commission takes no responsibility for any use made of the information set out. We would like to thank all the members of the PanCareSurPass consortium for their contribution and commitment to the vision of SurPass. We thank Kylie O’Brien from Pintail Services Limited, for her pivotal management and coordination work throughout the entire PanCareSurPass project. Publisher Copyright: © 2022 The authors, AIT Austrian Institute of Technology and IOS Press.
PY - 2022/5/16
Y1 - 2022/5/16
N2 - Compared to the general population, childhood cancer survivors represent a vulnerable population as they are at increased risk of developing health problems, known as late effects, resulting in excess morbidity and mortality. The Survivorship Passport aims to capture key health data about the survivors and their treatment, as well as personalized recommendations and a care plan with the aim to support long-term survivorship care. The PanCareSurPass (PCSP) project building on the experience gained in an earlier implementation in Giannina Gaslini Institute, Italy, will implement and rigorously assess an integrated, HL7 FHIR based, implementation of the Survivorship Passport. The six implementation countries, namely Austria, Belgium, Germany, Italy, Lithuania, and Spain, are supported by different national or regional digital health infrastructures and Electronic Medical Record (EMR) systems. Semi structured interviews were carried out to explore potential factors affecting implementation, identify use cases, and coded data that can be semi-automatically transferred from the EMR to SurPass. This paper reflects on findings of these interviews and confirms the need for a multidisciplinary and multi-professional approach towards a sustainable and integrated large-scale implementation of the Survivorship Passport across Europe.
AB - Compared to the general population, childhood cancer survivors represent a vulnerable population as they are at increased risk of developing health problems, known as late effects, resulting in excess morbidity and mortality. The Survivorship Passport aims to capture key health data about the survivors and their treatment, as well as personalized recommendations and a care plan with the aim to support long-term survivorship care. The PanCareSurPass (PCSP) project building on the experience gained in an earlier implementation in Giannina Gaslini Institute, Italy, will implement and rigorously assess an integrated, HL7 FHIR based, implementation of the Survivorship Passport. The six implementation countries, namely Austria, Belgium, Germany, Italy, Lithuania, and Spain, are supported by different national or regional digital health infrastructures and Electronic Medical Record (EMR) systems. Semi structured interviews were carried out to explore potential factors affecting implementation, identify use cases, and coded data that can be semi-automatically transferred from the EMR to SurPass. This paper reflects on findings of these interviews and confirms the need for a multidisciplinary and multi-professional approach towards a sustainable and integrated large-scale implementation of the Survivorship Passport across Europe.
KW - Cancer Survivors
KW - Childhood Cancer
KW - Electronic Medical Records
KW - HL7 FHIR
KW - International Patient Summary
KW - Paediatric Oncology
KW - Survivorship Passport
UR - http://www.scopus.com/inward/record.url?scp=85130340842&partnerID=8YFLogxK
U2 - https://doi.org/10.3233/SHTI220363
DO - https://doi.org/10.3233/SHTI220363
M3 - Conference contribution
C2 - 35592976
VL - 293
T3 - Studies in Health Technology and Informatics
SP - 161
EP - 168
BT - dHealth 2022 - Proceedings of the 16th Health Informatics Meets Digital Health Conference
A2 - Pfeifer, Bernhard
A2 - Baumgartner, Martin
PB - IOS Press BV
Y2 - 24 May 2022 through 25 May 2022
ER -