Implementation of Electronic Patient Reported Outcomes in Pediatric Daily Clinical Practice: The KLIK Experience

L. Haverman; H. A. van Oers; P. F. Limperg; C. T. Hijmans; S. A. Schepers; S. M. Sint Nicolaas; C.M. Verhaak; A. H. M. Bouts; K. Fijnvandraat; M. Peters; M. A. Van Rossum; J. B. van Goudoever; H. Maurice-Stam; M. A. Grootenhuis

doi:https://doi.org/10.1037/cpp0000043

Implementation of Electronic Patient Reported Outcomes in Pediatric Daily Clinical Practice: The KLIK Experience

L. Haverman, H. A. van Oers, P. F. Limperg, C. T. Hijmans, S. A. Schepers, S. M. Sint Nicolaas, C.M. Verhaak, A. H. M. Bouts, K. Fijnvandraat, M. Peters, M. A. Van Rossum, J. B. van Goudoever, H. Maurice-Stam, M. A. Grootenhuis

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74 Citations (Scopus)

Abstract

The use of patient reported outcomes (PROs) in pediatric practice is effective in increasing discussion about emotional and psychosocial functioning. This finding forms the basis for implementing KLIK: a web-based program using electronic PROs (ePROs). The aim of this article is to describe the KLIK implementation in line with the 8 methodological recommendations composed by the International Society for Quality of Life Research (ISOQOL). (1) Goal of KLIK: to monitor and screen children (aged 0–18) with chronic illnesses over extended periods of time. (2) Children aged 8–18 complete the questionnaires themselves. Parents complete the questionnaires for young children. (3) The basis is a generic HRQOL questionnaire. Disease-specific HRQOL and psychosocial questionnaires are also available. (4) A web-based mode was selected. (5) The questionnaires in KLIK are available prior to a consultation. Pediatricians retrieve the ePROfile from the website (www.hetklikt.nu) and discuss it with the patients. The ePROfile consists of a literal representation of the answers and a graphic presentation. (6) Various tools are used to aid in its interpretation. (7) All members of the multidisciplinary team receive training in how to use the website and how to adequately respond to the patient’s ePROfile. (8) Improvements to and evaluation of KLIK are ongoing. Since implementation began, 17 patient groups, 160 professionals and >1,450 patients have started using KLIK. The implementation of KLIK appears to be feasible and workable. Many pediatricians have shown an interest in using KLIK and it is therefore being expanded and adapted for different patient groups and hospitals. (PsycINFO Database Record (c) 2014 APA, all rights reserved)

Original language	English
Pages (from-to)	50-67
Journal	Clinical Practice in Pediatric Psychology
Volume	2
Issue number	1
DOIs	https://doi.org/10.1037/cpp0000043
Publication status	Published - 2014

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Haverman, L., van Oers, H. A., Limperg, P. F., Hijmans, C. T., Schepers, S. A., Sint Nicolaas, S. M., Verhaak, C. M., Bouts, A. H. M., Fijnvandraat, K., Peters, M., Van Rossum, M. A., van Goudoever, J. B., Maurice-Stam, H., & Grootenhuis, M. A. (2014). Implementation of Electronic Patient Reported Outcomes in Pediatric Daily Clinical Practice: The KLIK Experience. Clinical Practice in Pediatric Psychology, 2(1), 50-67. https://doi.org/10.1037/cpp0000043

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title = "Implementation of Electronic Patient Reported Outcomes in Pediatric Daily Clinical Practice: The KLIK Experience",

abstract = "The use of patient reported outcomes (PROs) in pediatric practice is effective in increasing discussion about emotional and psychosocial functioning. This finding forms the basis for implementing KLIK: a web-based program using electronic PROs (ePROs). The aim of this article is to describe the KLIK implementation in line with the 8 methodological recommendations composed by the International Society for Quality of Life Research (ISOQOL). (1) Goal of KLIK: to monitor and screen children (aged 0–18) with chronic illnesses over extended periods of time. (2) Children aged 8–18 complete the questionnaires themselves. Parents complete the questionnaires for young children. (3) The basis is a generic HRQOL questionnaire. Disease-specific HRQOL and psychosocial questionnaires are also available. (4) A web-based mode was selected. (5) The questionnaires in KLIK are available prior to a consultation. Pediatricians retrieve the ePROfile from the website (www.hetklikt.nu) and discuss it with the patients. The ePROfile consists of a literal representation of the answers and a graphic presentation. (6) Various tools are used to aid in its interpretation. (7) All members of the multidisciplinary team receive training in how to use the website and how to adequately respond to the patient{\textquoteright}s ePROfile. (8) Improvements to and evaluation of KLIK are ongoing. Since implementation began, 17 patient groups, 160 professionals and >1,450 patients have started using KLIK. The implementation of KLIK appears to be feasible and workable. Many pediatricians have shown an interest in using KLIK and it is therefore being expanded and adapted for different patient groups and hospitals. (PsycINFO Database Record (c) 2014 APA, all rights reserved)",

author = "L. Haverman and {van Oers}, {H. A.} and Limperg, {P. F.} and Hijmans, {C. T.} and Schepers, {S. A.} and {Sint Nicolaas}, {S. M.} and C.M. Verhaak and Bouts, {A. H. M.} and K. Fijnvandraat and M. Peters and {Van Rossum}, {M. A.} and {van Goudoever}, {J. B.} and H. Maurice-Stam and Grootenhuis, {M. A.}",

year = "2014",

doi = "https://doi.org/10.1037/cpp0000043",

language = "English",

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Haverman, L , van Oers, HA, Limperg, PF, Hijmans, CT, Schepers, SA, Sint Nicolaas, SM, Verhaak, CM, Bouts, AHM , Fijnvandraat, K, Peters, M, Van Rossum, MA , van Goudoever, JB, Maurice-Stam, H & Grootenhuis, MA 2014, 'Implementation of Electronic Patient Reported Outcomes in Pediatric Daily Clinical Practice: The KLIK Experience', Clinical Practice in Pediatric Psychology, vol. 2, no. 1, pp. 50-67. https://doi.org/10.1037/cpp0000043

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AU - Haverman, L.

AU - van Oers, H. A.

AU - Limperg, P. F.

AU - Hijmans, C. T.

AU - Schepers, S. A.

AU - Sint Nicolaas, S. M.

AU - Verhaak, C.M.

AU - Bouts, A. H. M.

AU - Fijnvandraat, K.

AU - Peters, M.

AU - Van Rossum, M. A.

AU - van Goudoever, J. B.

AU - Maurice-Stam, H.

AU - Grootenhuis, M. A.

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N2 - The use of patient reported outcomes (PROs) in pediatric practice is effective in increasing discussion about emotional and psychosocial functioning. This finding forms the basis for implementing KLIK: a web-based program using electronic PROs (ePROs). The aim of this article is to describe the KLIK implementation in line with the 8 methodological recommendations composed by the International Society for Quality of Life Research (ISOQOL). (1) Goal of KLIK: to monitor and screen children (aged 0–18) with chronic illnesses over extended periods of time. (2) Children aged 8–18 complete the questionnaires themselves. Parents complete the questionnaires for young children. (3) The basis is a generic HRQOL questionnaire. Disease-specific HRQOL and psychosocial questionnaires are also available. (4) A web-based mode was selected. (5) The questionnaires in KLIK are available prior to a consultation. Pediatricians retrieve the ePROfile from the website (www.hetklikt.nu) and discuss it with the patients. The ePROfile consists of a literal representation of the answers and a graphic presentation. (6) Various tools are used to aid in its interpretation. (7) All members of the multidisciplinary team receive training in how to use the website and how to adequately respond to the patient’s ePROfile. (8) Improvements to and evaluation of KLIK are ongoing. Since implementation began, 17 patient groups, 160 professionals and >1,450 patients have started using KLIK. The implementation of KLIK appears to be feasible and workable. Many pediatricians have shown an interest in using KLIK and it is therefore being expanded and adapted for different patient groups and hospitals. (PsycINFO Database Record (c) 2014 APA, all rights reserved)

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