Informal care for persons with dementia: characteristics and evidence-based support interventions.

RM Dröes, Anja Declercq, M.S. Mittelman, C. Van Audenhove

Research output: Chapter in Book/Report/Conference proceedingChapterAcademicpeer-review


A vast majority of persons with dementia receive help and support from family members, friends and neighbours. Research shows a high reliance on informal long-term care for persons with dementia. In this chapter we discuss the role of informal care in dementia care and the sustainability of that role. Societal changes have an impact on the availability of informal carers and on the division of tasks between formal and informal care. Taking care of a family member can be rewarding as well as challenging. Depending upon the stage of the dementia process the challenges have differing characteristics and the burden changes. Evidence-based interventions have been developed to support either the person with dementia and their informal carer or the family network of the person with dementia. These interventions can alleviate challenges and support informal carers in their role.
Original languageEnglish
Title of host publicationDementia & Society
Subtitle of host publicationan interdisciplinary approach
EditorsMathieu Vandenbulcke, Rose-Marie Droes, Erik Schokkaert
Place of PublicationCambridge
PublisherCambridge University Press
Number of pages24
ISBN (Electronic)1108918956
ISBN (Print)9781108918954
Publication statusPublished - 26 May 2022


  • informal care family care dementia care process evidence-based interventions

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