TY - JOUR
T1 - Legal constraints on genetic data processing in European grids
AU - Mouw, Evert
AU - van't Noordende, Guido
AU - van Kampen, Antoine H. C.
AU - Louter, Baas
AU - Santcroos, Mark
AU - Olabarriaga, Silvia D.
PY - 2012
Y1 - 2012
N2 - European laws on privacy and data security are not explicit about the storage and processing of genetic data. Especially whole-genome data is identifying and contains a lot of personal information. Is processing of such data allowed in computing grids? To find out, we looked at legal precedents in related fields, current literature, and interviews with legal experts. We found that processing of genetic data is only allowed on distributed systems with specific security measures, both technical and organizational. Informed consent, although important, offers no substitute for such requirements
AB - European laws on privacy and data security are not explicit about the storage and processing of genetic data. Especially whole-genome data is identifying and contains a lot of personal information. Is processing of such data allowed in computing grids? To find out, we looked at legal precedents in related fields, current literature, and interviews with legal experts. We found that processing of genetic data is only allowed on distributed systems with specific security measures, both technical and organizational. Informed consent, although important, offers no substitute for such requirements
M3 - Article
C2 - 22941987
SN - 0926-9630
VL - 175
SP - 49
EP - 58
JO - Studies in health technology and informatics
JF - Studies in health technology and informatics
ER -