TY - JOUR
T1 - Parental empowerment in paediatric rehabilitation: Exploring the role of a digital tool to help parents prepare for consultation with a physician
AU - The WWW, roadmap study group
AU - Alsem, Mattijs W.
AU - Verhoef, Marjolein
AU - Braakman, Jessica
AU - van Meeteren, Karen M.
AU - Siebes, Renate C.
AU - Jongmans, Marian J.
AU - Visser-Meily, Johanna M. A.
AU - Ketelaar, Marjolijn
PY - 2019/1/1
Y1 - 2019/1/1
N2 - Background: To explore experiences of parents of children with disabilities using the WWW, roadmap, a tool to support them in exploring needs, finding information, and asking questions of professionals and to explore differences between parents who had used the WWW-roadmap to prepare for consultation with their rehabilitation physician and parents who had not. Methods: In a sequential cohort study, we included 128 parents; 54 used the WWW-roadmap prior to consultation and 74 received care-as-usual. Both groups completed questionnaires after consultation, assessing empowerment, self-efficacy, parent and physician satisfaction, family centredness of care, and experiences using the tool. Additionally, 13 parents were interviewed. Results: Parents who used the WWW-roadmap looked up more information on the Internet. No other differences between parents and physicians were found. In the interviews, parents said that the WWW-roadmap was a useful tool for looking up information, exploring and asking questions, and maintaining a comprehensive picture. Conclusion: Using the WWW-roadmap prior to consultation did not improve self-efficacy, satisfaction, or family centredness of care. Findings suggest positive experiences regarding factors determining empowerment, creating conditions for a more equal parent–physician relationship. The WWW-roadmap is useful for parents to explore their needs and find information, but more is needed to support empowerment in consultations.
AB - Background: To explore experiences of parents of children with disabilities using the WWW, roadmap, a tool to support them in exploring needs, finding information, and asking questions of professionals and to explore differences between parents who had used the WWW-roadmap to prepare for consultation with their rehabilitation physician and parents who had not. Methods: In a sequential cohort study, we included 128 parents; 54 used the WWW-roadmap prior to consultation and 74 received care-as-usual. Both groups completed questionnaires after consultation, assessing empowerment, self-efficacy, parent and physician satisfaction, family centredness of care, and experiences using the tool. Additionally, 13 parents were interviewed. Results: Parents who used the WWW-roadmap looked up more information on the Internet. No other differences between parents and physicians were found. In the interviews, parents said that the WWW-roadmap was a useful tool for looking up information, exploring and asking questions, and maintaining a comprehensive picture. Conclusion: Using the WWW-roadmap prior to consultation did not improve self-efficacy, satisfaction, or family centredness of care. Findings suggest positive experiences regarding factors determining empowerment, creating conditions for a more equal parent–physician relationship. The WWW-roadmap is useful for parents to explore their needs and find information, but more is needed to support empowerment in consultations.
UR - https://www.scopus.com/inward/record.uri?partnerID=HzOxMe3b&scp=85069905109&origin=inward
UR - https://www.ncbi.nlm.nih.gov/pubmed/31276605
UR - http://www.scopus.com/inward/record.url?scp=85069905109&partnerID=8YFLogxK
U2 - https://doi.org/10.1111/cch.12700
DO - https://doi.org/10.1111/cch.12700
M3 - Article
C2 - 31276605
SN - 0305-1862
VL - 45
SP - 623
EP - 636
JO - Child: care, health and development
JF - Child: care, health and development
IS - 5
ER -