TY - JOUR
T1 - Participation of adults with visual and severe or profound intellectual disabilities
T2 - Analysis of individual support plans
AU - Hanzen, Gineke
AU - Waninge, Aly
AU - Vlaskamp, Carla
AU - van Nispen, Ruth M.A.
AU - van der Putten, Annette A.J.
PY - 2018/12/1
Y1 - 2018/12/1
N2 - Background: The extent of participation of adults with visual and severe or profound intellectual disabilities (VSPID) is unclear. Aims: To explore participation of adults with VSPID and the association between occurrence and importance of aspects of participation. Methods: Individual support plans (ISPs) of 40 adults with VSPID were analyzed: selected text fragments were categorized according to 125 previously operationalized statements that had different levels of importance and were divided into seven participation clusters. Results: The ISPs contained 2791 text fragments that related to a statement. All clusters were covered: the clusters ‘Experience and discover’ (91.7%), ‘Involvement’ (90%), and ‘Social relations’ (87.5%) were well covered. ‘Inclusion’ (53.6%) and ‘Leisure and recreation’ (57.1%) were mentioned less often. Among the 36 high-importance statements, two related to ‘Inclusion’ ‘Involvement’ and ‘Social Relations’ each, three to ‘Communication and being understood’ and five to ‘Self-management and autonomy’ had at least 30 text fragments. Conclusions: The participation domains ‘Experience and discover’ ‘Involvement’ and ‘Social relations’ are well-documented, suggesting that adults with VSPID participate in those areas. However, domains such as ‘inclusion in society’ and ‘leisure in society’ were not documented. This overview of participation offers residential facilities the opportunity to determine in which areas participation can be improved.
AB - Background: The extent of participation of adults with visual and severe or profound intellectual disabilities (VSPID) is unclear. Aims: To explore participation of adults with VSPID and the association between occurrence and importance of aspects of participation. Methods: Individual support plans (ISPs) of 40 adults with VSPID were analyzed: selected text fragments were categorized according to 125 previously operationalized statements that had different levels of importance and were divided into seven participation clusters. Results: The ISPs contained 2791 text fragments that related to a statement. All clusters were covered: the clusters ‘Experience and discover’ (91.7%), ‘Involvement’ (90%), and ‘Social relations’ (87.5%) were well covered. ‘Inclusion’ (53.6%) and ‘Leisure and recreation’ (57.1%) were mentioned less often. Among the 36 high-importance statements, two related to ‘Inclusion’ ‘Involvement’ and ‘Social Relations’ each, three to ‘Communication and being understood’ and five to ‘Self-management and autonomy’ had at least 30 text fragments. Conclusions: The participation domains ‘Experience and discover’ ‘Involvement’ and ‘Social relations’ are well-documented, suggesting that adults with VSPID participate in those areas. However, domains such as ‘inclusion in society’ and ‘leisure in society’ were not documented. This overview of participation offers residential facilities the opportunity to determine in which areas participation can be improved.
KW - Individual support plans
KW - Participation
KW - Severe or profound intellectual disabilities
KW - Visual disability
UR - http://www.scopus.com/inward/record.url?scp=85052860296&partnerID=8YFLogxK
U2 - https://doi.org/10.1016/j.ridd.2018.08.012
DO - https://doi.org/10.1016/j.ridd.2018.08.012
M3 - Article
C2 - 30196028
SN - 0891-4222
VL - 83
SP - 132
EP - 141
JO - Research in developmental disabilities
JF - Research in developmental disabilities
ER -