TY - JOUR
T1 - PARTICIPATION RESTRICTIONS IN AMBULATORY AMYOTROPHIC LATERAL SCLEROSIS PATIENTS: PHYSICAL AND PSYCHOLOGICAL FACTORS
AU - van Groenestijn, Annerieke C.
AU - Schröder, Carin D.
AU - Kruitwagen-van Reenen, Esther T.
AU - van den Berg, Leonard H.
AU - Visser-Meily, Johanna M. A.
PY - 2017
Y1 - 2017
N2 - IntroductionThe aim of this study was to assess the prevalence of participation restrictions in ambulatory patients with amyotrophic lateral sclerosis (ALS) and to identify physical and psychological contributory factors. MethodsIn this cross-sectional study, self-reported participation restrictions of 72 ambulatory ALS patients were assessed using the social health status dimension (SIPSOC) of the Sickness Impact Profile (SIP-68). Associations between SIPSOC and physical functioning, psychological factors, and demographic factors were analyzed using hierarchical regression analyses. ResultsNinety-two percent of the patients reported participation restrictions; 54.9% could be explained by physical functioning; psychological factors accounted for 8.1% of the variance. Lung capacity, functional mobility, fatigue, and helplessness were independently associated with participation restrictions. ConclusionsAmbulatory ALS patients have participation restrictions, which may be influenced if early ALS care is directed toward lung capacity, functional mobility, fatigue, and feelings of helplessness
AB - IntroductionThe aim of this study was to assess the prevalence of participation restrictions in ambulatory patients with amyotrophic lateral sclerosis (ALS) and to identify physical and psychological contributory factors. MethodsIn this cross-sectional study, self-reported participation restrictions of 72 ambulatory ALS patients were assessed using the social health status dimension (SIPSOC) of the Sickness Impact Profile (SIP-68). Associations between SIPSOC and physical functioning, psychological factors, and demographic factors were analyzed using hierarchical regression analyses. ResultsNinety-two percent of the patients reported participation restrictions; 54.9% could be explained by physical functioning; psychological factors accounted for 8.1% of the variance. Lung capacity, functional mobility, fatigue, and helplessness were independently associated with participation restrictions. ConclusionsAmbulatory ALS patients have participation restrictions, which may be influenced if early ALS care is directed toward lung capacity, functional mobility, fatigue, and feelings of helplessness
U2 - https://doi.org/10.1002/mus.25574
DO - https://doi.org/10.1002/mus.25574
M3 - Article
C2 - 28073181
SN - 0148-639X
VL - 56
SP - 912
EP - 918
JO - Muscle & Nerve
JF - Muscle & Nerve
IS - 5
ER -