TY - JOUR
T1 - Perception of the Quality of Communication With Physicians Among Relatives of Dying Residents of Long-term Care Facilities in 6 European Countries: PACE Cross-Sectional Study
AU - The European Association For Palliative Care Onlus
AU - European Forum For Primary Care
AU - Age Platform Europe
AU - Alzheimer Europe
AU - Barańska, Ilona
AU - Kijowska, Violetta
AU - Engels, Yvonne
AU - Finne-Soveri, Harriet
AU - Froggatt, Katherine
AU - Gambassi, Giovanni
AU - Hammar, Teija
AU - Oosterveld-Vlug, Mariska
AU - Payne, Sheila
AU - van den Noortgate, Nele
AU - Smets, Tinne
AU - Deliens, Luc
AU - van den Block, Lieve
AU - Szczerbińska, Katarzyna
AU - Adang, Eddy
AU - Andreasen, Paula
AU - Moore, Danni Collingridge
AU - van Hout, Hein
AU - Koppel, Maud ten
AU - Mammarella, Federica
AU - Mercuri, Martina
AU - Onwuteaka-Philipsen, Bregje D.
AU - Pivodic, Lara
AU - Rossi, Paola
AU - Sowerby, Eleanor
AU - Stodolska, Agata
AU - Wichmann, Anne
AU - van der Steen, Jenny T.
AU - Vernooij-Dassen, Myrra
AU - the European Association for Palliative Care Onlus, null
AU - European Forum for Primary Care, null
AU - Age Platform Europe, null
AU - Alzheimer Europe, null
N1 - Funding Information: Funding sources: This work was supported by the European Union's Seventh Framework Programme (FP7/2007e2013) under Grant agreement 603111 (PACE project Palliative Care for Older People). The project was co-funded by Polish Ministry of Science and Higher Education in 2014-2019 based on decision no. 3202/7PR/2014/2 dated November 25, 2014. The benefactors had no role in study design, collection, analysis or interpretation of the data, nor in writing and the decision to submit this article for publication. Funding sources: This work was supported by the European Union's Seventh Framework Programme ( FP7/2007e2013) under Grant agreement 603111 ( PACE project Palliative Care for Older People). The project was co-funded by Polish Ministry of Science and Higher Education in 2014-2019 based on decision no. 3202/7PR/2014/2 dated November 25, 2014. The benefactors had no role in study design, collection, analysis or interpretation of the data, nor in writing and the decision to submit this article for publication. The authors thank all long-term care facilities and their staff for participating in this project. The authors also thank other PACE collaborators not in the author list: Eddy Adang, Paula Andreasen, Danni Collingridge Moore, Hein van Hout, Maud ten Koppel, Federica Mammarella, Martina Mercuri, Bregje D Onwuteaka-Philipsen, Lara Pivodic, Paola Rossi, Eleanor Sowerby, Agata Stodolska, Anne Wichmann, Jenny T. van der Steen, Myrra Vernooij-Dassen, and the European Association for Palliative Care Onlus, European Forum for Primary Care, Age Platform Europe, and Alzheimer Europe. Funding sources: This work was supported by the European Union's Seventh Framework Programme ( FP7/2007e2013) under Grant agreement 603111 ( PACE project Palliative Care for Older People). The project was co-funded by Polish Ministry of Science and Higher Education in 2014-2019 based on decision no. 3202/7PR/2014/2 dated November 25, 2014. The benefactors had no role in study design, collection, analysis or interpretation of the data, nor in writing and the decision to submit this article for publication. Funding Information: Funding sources: This work was supported by the European Union's Seventh Framework Programme (FP7/2007e2013) under Grant agreement 603111 (PACE project Palliative Care for Older People). The project was co-funded by Polish Ministry of Science and Higher Education in 2014-2019 based on decision no. 3202/7PR/2014/2 dated November 25, 2014. The benefactors had no role in study design, collection, analysis or interpretation of the data, nor in writing and the decision to submit this article for publication. Publisher Copyright: © 2019 AMDA – The Society for Post-Acute and Long-Term Care Medicine Copyright: Copyright 2020 Elsevier B.V., All rights reserved.
PY - 2020/3/1
Y1 - 2020/3/1
N2 - Objective: To examine how relatives evaluate the quality of communication with the treating physician of a dying resident in long-term care facilities (LTCFs) and to assess its differences between countries. Design: A cross-sectional retrospective study in a representative sample of LTCFs conducted in 2015. Relatives of residents who died during the previous 3 months were sent a questionnaire. Settings and participants: 761 relatives of deceased residents in 241 LTCFs in Belgium, England, Finland, Italy, the Netherlands, and Poland. Methods: The Family Perception of Physician-Family Communication (FPPFC) scale (ratings from 0 to 3, where 3 means the highest quality) was used to retrospectively assess how the quality of end-of-life communication with treating physicians was perceived by relatives. We applied multilevel linear and logistic regression models to assess differences between countries and LTCF types. Results: The FPPFC score was the lowest in Finland (1.4 ± 0.8) and the highest in Italy (2.2 ± 0.7). In LTCFs served by general practitioners, the FPPFC score differed between countries, but did not in LTCFs with on-site physicians. Most relatives reported that they were well informed about a resident's general condition (from 50.8% in Finland to 90.6% in Italy) and felt listened to (from 53.1% in Finland to 84.9% in Italy) and understood by the physician (from 56.7% in Finland to 85.8% in Italy). In most countries, relatives assessed the worst communication as being about the resident's wishes for medical treatment at the end of life, with the lowest rate of satisfied relatives in Finland (37.6%). Conclusion: The relatives' perception of the quality of end-of-life communication with physicians differs between countries. However, in all countries, physicians' communication needs to be improved, especially regarding resident's wishes for medical care at the end of life. Implications: Training in end-of-life communication to physicians providing care for LTCF residents is recommended.
AB - Objective: To examine how relatives evaluate the quality of communication with the treating physician of a dying resident in long-term care facilities (LTCFs) and to assess its differences between countries. Design: A cross-sectional retrospective study in a representative sample of LTCFs conducted in 2015. Relatives of residents who died during the previous 3 months were sent a questionnaire. Settings and participants: 761 relatives of deceased residents in 241 LTCFs in Belgium, England, Finland, Italy, the Netherlands, and Poland. Methods: The Family Perception of Physician-Family Communication (FPPFC) scale (ratings from 0 to 3, where 3 means the highest quality) was used to retrospectively assess how the quality of end-of-life communication with treating physicians was perceived by relatives. We applied multilevel linear and logistic regression models to assess differences between countries and LTCF types. Results: The FPPFC score was the lowest in Finland (1.4 ± 0.8) and the highest in Italy (2.2 ± 0.7). In LTCFs served by general practitioners, the FPPFC score differed between countries, but did not in LTCFs with on-site physicians. Most relatives reported that they were well informed about a resident's general condition (from 50.8% in Finland to 90.6% in Italy) and felt listened to (from 53.1% in Finland to 84.9% in Italy) and understood by the physician (from 56.7% in Finland to 85.8% in Italy). In most countries, relatives assessed the worst communication as being about the resident's wishes for medical treatment at the end of life, with the lowest rate of satisfied relatives in Finland (37.6%). Conclusion: The relatives' perception of the quality of end-of-life communication with physicians differs between countries. However, in all countries, physicians' communication needs to be improved, especially regarding resident's wishes for medical care at the end of life. Implications: Training in end-of-life communication to physicians providing care for LTCF residents is recommended.
UR - https://www.scopus.com/inward/record.uri?partnerID=HzOxMe3b&scp=85068063801&origin=inward
UR - https://www.ncbi.nlm.nih.gov/pubmed/31272854
U2 - https://doi.org/10.1016/j.jamda.2019.05.003
DO - https://doi.org/10.1016/j.jamda.2019.05.003
M3 - Article
C2 - 31272854
SN - 1525-8610
VL - 21
SP - 331
EP - 337
JO - Journal of the American Medical Directors Association
JF - Journal of the American Medical Directors Association
IS - 3
ER -