TY - JOUR
T1 - Practitioner Review
T2 - It's time to bridge the gap – understanding the unmet needs of consumers with attention-deficit/hyperactivity disorder – a systematic review and recommendations
AU - Bisset, Matthew
AU - Brown, Louise E.
AU - Bhide, Sampada
AU - Patel, Pooja
AU - Zendarski, Nardia
AU - Coghill, David
AU - Payne, Leanne
AU - Bellgrove, Mark A.
AU - Middeldorp, Christel M.
AU - Sciberras, Emma
N1 - Funding Information: L.B., D.C., M.A.B., C.M. and E.S. are board members of the Australian ADHD Professionals Association (AADPA). Outside the submitted work, E.S. receives royalties for her published book ‘Sleep and ADHD: An evidence-based guide to assessment and treatment’. D.C. reports grants and personal fees from Shire/Takeda and personal fees each from Medice, Oxford University Press and Servier, outside the submitted work. All other authors have no financial relationships or conflicts of interest relevant to this article to disclose. Study commissioned by AADPA and funded through the Australian Government Department of Health Mental Health program awarded to AADPA. E.S. is funded by a National Health and Medical Research Council (NHMRC) Career Development Fellowship (#1110688), Medical Research Future Fund (MRFF) Investigator Grant (#1194297) and a veski Inspiring Women's Fellowship. M.A.B. is funded by an NHMRC Senior Research Fellowship and receives project support from the NHMRC and MRFF. Open access publishing facilitated by Deakin University, as part of the Wiley - Deakin University agreement via the Council of Australian University Librarians.Key points Understanding the unmet needs of ADHD consumers can provide critical insight required to address gaps and improve outcomes. This systematic review found that ADHD consumers have many unmet needs relating to broadly focused clinical care; ADHD-related education and training for consumers, professionals, educators and the community; access to services/supports; accommodations in schools; and ongoing research. The following is recommended in order to address the unmet needs of ADHD consumers: improving access to and quality of multimodal care provision; incorporating recovery principles in care provision; improving consumer and community health literacy for ADHD; and increasing consumer participation. Understanding the unmet needs of ADHD consumers can provide critical insight required to address gaps and improve outcomes. This systematic review found that ADHD consumers have many unmet needs relating to broadly focused clinical care; ADHD-related education and training for consumers, professionals, educators and the community; access to services/supports; accommodations in schools; and ongoing research. The following is recommended in order to address the unmet needs of ADHD consumers: improving access to and quality of multimodal care provision; incorporating recovery principles in care provision; improving consumer and community health literacy for ADHD; and increasing consumer participation. Funding Information: To rectify this, practitioners are encouraged to work closely with other professionals (Young, Asherson, Lloyd, Absoud, & Arif, 2021 ) – we acknowledge this is likely more easily facilitated within interdisciplinary clinics (e.g. see Coghill & Seth, 2015 for an example service model and associated resources). Greater investment from governments is also required in the form of financial assistance for consumers, funding for workforce education/training and grants to undertake research that aims to best facilitate the provision of multimodal care (Young et al., 2021 ). Other strategies that may improve access to multimodal service provision include using telehealth and improved ADHD training in tertiary education. Publisher Copyright: © 2023 The Authors. Journal of Child Psychology and Psychiatry published by John Wiley & Sons Ltd on behalf of Association for Child and Adolescent Mental Health.
PY - 2023/6
Y1 - 2023/6
N2 - Objective: Understanding the unmet needs of healthcare consumers with attention-deficit/hyperactivity disorder (ADHD) (individuals with ADHD and their caregivers) provides critical insight into gaps in services, education and research that require focus and funding to improve outcomes. This review examines the unmet needs of ADHD consumers from a consumer perspective. Methods: A standardised search protocol identified peer-reviewed studies published between December 2011 and December 2021 focusing on consumer-identified needs relating to ADHD clinical care or research priorities. Results: 1,624 articles were screened with 23 studies that reviewed examining the needs of ADHD consumers from Europe, the U.K., Hong Kong, Iran, Australia, the U.S.A. and Canada. Consumer-identified needs related to: treatment that goes beyond medication (12 studies); improved ADHD-related education/training (17 studies); improved access to clinical services, carer support and financial assistance (14 studies); school accommodations/support (6 studies); and ongoing treatment efficacy research (1 study). Conclusion: ADHD consumers have substantial unmet needs in clinical, psychosocial and research contexts. Recommendations to address these needs include: improving access to and quality of multimodal care provision; incorporating recovery principles into care provision; fostering ADHD health literacy; and increasing consumer participation in research, service development and ADHD-related training/education.
AB - Objective: Understanding the unmet needs of healthcare consumers with attention-deficit/hyperactivity disorder (ADHD) (individuals with ADHD and their caregivers) provides critical insight into gaps in services, education and research that require focus and funding to improve outcomes. This review examines the unmet needs of ADHD consumers from a consumer perspective. Methods: A standardised search protocol identified peer-reviewed studies published between December 2011 and December 2021 focusing on consumer-identified needs relating to ADHD clinical care or research priorities. Results: 1,624 articles were screened with 23 studies that reviewed examining the needs of ADHD consumers from Europe, the U.K., Hong Kong, Iran, Australia, the U.S.A. and Canada. Consumer-identified needs related to: treatment that goes beyond medication (12 studies); improved ADHD-related education/training (17 studies); improved access to clinical services, carer support and financial assistance (14 studies); school accommodations/support (6 studies); and ongoing treatment efficacy research (1 study). Conclusion: ADHD consumers have substantial unmet needs in clinical, psychosocial and research contexts. Recommendations to address these needs include: improving access to and quality of multimodal care provision; incorporating recovery principles into care provision; fostering ADHD health literacy; and increasing consumer participation in research, service development and ADHD-related training/education.
KW - Attention-deficit/hyperactivity disorder
KW - consumers
KW - needs
KW - recommendations
KW - systematic review
UR - http://www.scopus.com/inward/record.url?scp=85146443267&partnerID=8YFLogxK
U2 - https://doi.org/10.1111/jcpp.13752
DO - https://doi.org/10.1111/jcpp.13752
M3 - Review article
C2 - 36651107
SN - 0021-9630
VL - 64
SP - 848
EP - 858
JO - Journal of Child Psychology and Psychiatry and Allied Disciplines
JF - Journal of Child Psychology and Psychiatry and Allied Disciplines
IS - 6
ER -