TY - JOUR
T1 - Predictors for response to electronic patient-reported outcomes in routine care in patients with rheumatoid arthritis
T2 - a retrospective cohort study
AU - Wiegel, Jimmy
AU - Seppen, Bart F.
AU - Nurmohamed, Michael T.
AU - ter Wee, Marieke M.
AU - Bos, Wouter H.
N1 - Publisher Copyright: © 2023, The Author(s).
PY - 2023/4
Y1 - 2023/4
N2 - Routine collection of electronic patient-reported outcomes (ePROs) can improve clinical care. However, a low response rate may counteract the benefits. To optimize adoption, the aim of this study was to investigate which patient factors and/or timing of the invitation predicted response to ePROs sent prior to consultations in patients with rheumatoid arthritis. We performed a retrospective database study with clinical data collected as part of usual care from the electronic medical records at Reade Amsterdam. The dataset comprised the email invitations to complete the ePRO sent prior to consultation. Multiple patient factors and factors defining the timing of the invitation were investigated if they predicted response to the ePRO through a multivariable logistic generalized estimating equation analysis. In total, 17.070 ePRO invitations were sent to 3194 patients (mean age 60 (SD 14), 74% female), of which 40% was completed. Patients between 55 and 73 years (OR 1.39, 95%CI 1.09–1.77) and with higher social economic status (SES) (OR 1.51, 95%CI 1.22–1.88) had significantly higher odds for completing the ePRO, while patients living in an urban area had lower odds (OR 0.69, 95% CI 0.62–0.76). In year 4 after implementation, the OR was increased to 3.69 (95% CI 2.91–4.90). The implementation of ePROs in daily clinical practice needs improvement since 40% of the ePROs sent prior to consultations were completed. Patients that had higher odds to report the next ePRO were between the age of 55–73, had a higher socio-economic status, and were residents in a rural area. The adoption of reporting the PRO increased over time, but the timing of the prompt did not predict response. Additional research is needed to understand ePRO completion, especially for patients with lower socio-economic status.
AB - Routine collection of electronic patient-reported outcomes (ePROs) can improve clinical care. However, a low response rate may counteract the benefits. To optimize adoption, the aim of this study was to investigate which patient factors and/or timing of the invitation predicted response to ePROs sent prior to consultations in patients with rheumatoid arthritis. We performed a retrospective database study with clinical data collected as part of usual care from the electronic medical records at Reade Amsterdam. The dataset comprised the email invitations to complete the ePRO sent prior to consultation. Multiple patient factors and factors defining the timing of the invitation were investigated if they predicted response to the ePRO through a multivariable logistic generalized estimating equation analysis. In total, 17.070 ePRO invitations were sent to 3194 patients (mean age 60 (SD 14), 74% female), of which 40% was completed. Patients between 55 and 73 years (OR 1.39, 95%CI 1.09–1.77) and with higher social economic status (SES) (OR 1.51, 95%CI 1.22–1.88) had significantly higher odds for completing the ePRO, while patients living in an urban area had lower odds (OR 0.69, 95% CI 0.62–0.76). In year 4 after implementation, the OR was increased to 3.69 (95% CI 2.91–4.90). The implementation of ePROs in daily clinical practice needs improvement since 40% of the ePROs sent prior to consultations were completed. Patients that had higher odds to report the next ePRO were between the age of 55–73, had a higher socio-economic status, and were residents in a rural area. The adoption of reporting the PRO increased over time, but the timing of the prompt did not predict response. Additional research is needed to understand ePRO completion, especially for patients with lower socio-economic status.
KW - Adherence
KW - Electronic patient reported outcomes
KW - Rheumatoid arthritis
KW - Telehealth
KW - eHealth
KW - ePROs
UR - http://www.scopus.com/inward/record.url?scp=85147098446&partnerID=8YFLogxK
U2 - https://doi.org/10.1007/s00296-023-05278-6
DO - https://doi.org/10.1007/s00296-023-05278-6
M3 - Article
C2 - 36715728
SN - 0172-8172
VL - 43
SP - 651
EP - 657
JO - Rheumatology international
JF - Rheumatology international
IS - 4
ER -