TY - JOUR
T1 - Reconfiguring a New Normal: A Socio-Ecological Perspective for Design Innovation in Sensitive Settings
AU - D'Olivo, Patrizia
AU - Rozendaal, Marco C.
AU - Giaccardi, Elisa
AU - Grootenhuis, Martha A.
AU - Huisman, Jaap
PY - 2018
Y1 - 2018
N2 - What can design do to address adverse life events like childhood cancer? Cancer is not just a health matter—it strains family relationships and profoundly disrupts the stability of everyday routines. In this article, we introduce a socio-ecological perspective that untangles the systemic complexity of the challenges families face when confronted with childhood cancer. We use this lens to identify potential design opportunities for reconfiguring a “new normal” in their lives. We present and discuss the results of a participant observation of childhood cancer survivors at a large support group conference. These findings we analyze and organize into five themes corresponding to specific coping strategies: accepting the transformation of one's body, avoiding avoidance, maintaining interest in social activities, retaining a sense of belonging to one's social networks, and dealing with social stigma. These themes reveal opportunities for design innovation in sensitive settings that traverse the fields of interaction design, developmental psychology, and pediatric oncology.
AB - What can design do to address adverse life events like childhood cancer? Cancer is not just a health matter—it strains family relationships and profoundly disrupts the stability of everyday routines. In this article, we introduce a socio-ecological perspective that untangles the systemic complexity of the challenges families face when confronted with childhood cancer. We use this lens to identify potential design opportunities for reconfiguring a “new normal” in their lives. We present and discuss the results of a participant observation of childhood cancer survivors at a large support group conference. These findings we analyze and organize into five themes corresponding to specific coping strategies: accepting the transformation of one's body, avoiding avoidance, maintaining interest in social activities, retaining a sense of belonging to one's social networks, and dealing with social stigma. These themes reveal opportunities for design innovation in sensitive settings that traverse the fields of interaction design, developmental psychology, and pediatric oncology.
UR - https://www.scopus.com/inward/record.uri?partnerID=HzOxMe3b&scp=85059799241&origin=inward
U2 - https://doi.org/10.1016/j.sheji.2018.10.003
DO - https://doi.org/10.1016/j.sheji.2018.10.003
M3 - Article
SN - 2405-8726
VL - 4
SP - 392
EP - 406
JO - She Ji
JF - She Ji
IS - 4
ER -