TY - JOUR
T1 - Satisfying Basic Psychological Needs among People with Complex Support Needs
T2 - A Self-Determination Theory-Guided Analysis of Primary Relatives’ Perspectives
AU - van Tuyll van Serooskerken, Jacqueline M.
AU - Willemen, Agnes M.
AU - de la Croix, Anne
AU - Embregts, Petri J.C.M.
AU - Schuengel, Carlo
N1 - Funding Information: The authors would like to express their sincere gratitude to the relatives and family members with complex support needs who participated in this study. Furthermore, recruitment was supported by ’s Heeren Loo, EMB Nederland, and Per Saldo, three Dutch care and client advocacy organizations that support people with disabilities and their caregivers. The authors would like to thank these organizations sincerely for their time and effort in recruiting relatives. Funding Information: This research was funded by The Netherlands Organisation for Health Research and Development (ZonMw) Nationaal Programma Gewoon Bijzonder, grant number 845004005. Partial funding (i.e., co-financing) for this research was provided by Stichting Wetenschappelijk Onderzoek of ’s Heeren Loo, The Netherlands. Publisher Copyright: © 2022 by the authors.
PY - 2022/6
Y1 - 2022/6
N2 - Background: The fulfilment of basic psychological needs (BPNs) is seen as an integral part of human self-determination, subjective wellbeing, and overall quality of life. However, the meaning of these psychological constructs for individuals with the most extensive support needs remains elusive. Methods: Primary relatives of nine people diagnosed with severe or profound intellectual and multiple disabilities were interviewed about their perceptions of autonomy, competence, and relatedness regarding their family member with complex care needs, and about the ways in which they tried to support their family member in fulfilling specific BPNs. The interview analysis followed a grounded theory with the sensitizing concepts approach. Results: The relatives assigned important meaning to the BPNs, providing insights into their subtle nature, their implicit drivers, and how they were experienced. The relatives also identified serious challenges in detecting, clarifying, and creating opportunities for BPNs. Conclusions: The themes in the relatives’ perspectives can be summarized into a conceptual framework that may contribute to better mutual understanding between people with complex care needs, their relatives, and healthcare providers.
AB - Background: The fulfilment of basic psychological needs (BPNs) is seen as an integral part of human self-determination, subjective wellbeing, and overall quality of life. However, the meaning of these psychological constructs for individuals with the most extensive support needs remains elusive. Methods: Primary relatives of nine people diagnosed with severe or profound intellectual and multiple disabilities were interviewed about their perceptions of autonomy, competence, and relatedness regarding their family member with complex care needs, and about the ways in which they tried to support their family member in fulfilling specific BPNs. The interview analysis followed a grounded theory with the sensitizing concepts approach. Results: The relatives assigned important meaning to the BPNs, providing insights into their subtle nature, their implicit drivers, and how they were experienced. The relatives also identified serious challenges in detecting, clarifying, and creating opportunities for BPNs. Conclusions: The themes in the relatives’ perspectives can be summarized into a conceptual framework that may contribute to better mutual understanding between people with complex care needs, their relatives, and healthcare providers.
KW - basic psychological needs
KW - grounded theory
KW - people with extensive and complex support needs
KW - people with extensive and complex support needs; primary relatives; basic psychological needs; self-determination; grounded theory; sensitizing concepts
KW - primary relatives
KW - self-determination
KW - sensitizing concepts
UR - http://www.scopus.com/inward/record.url?scp=85144010702&partnerID=8YFLogxK
U2 - https://doi.org/10.3390/disabilities2020024
DO - https://doi.org/10.3390/disabilities2020024
M3 - Article
SN - 2673-7272
VL - 2
SP - 330
EP - 347
JO - Disabilities
JF - Disabilities
IS - 2
ER -