TY - JOUR
T1 - Self- reported and informal caregiver proxy-reported met needs in persons living with dementia are associated with lower health-related quality of life
T2 - a dyadic, cross-sectional study
AU - Wammes, Joost D.
AU - Laws, Holly B.
AU - van Hout, Hein P. J.
AU - MacNeil Vroomen, Janet L.
AU - Monin, Joan K.
N1 - Publisher Copyright: © 2023 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group.
PY - 2023
Y1 - 2023
N2 - Objective: This study examined the dyadic association of self and informal caregiver proxy-reported met needs in persons living with dementia on the health-related quality of life (HRQOL). Methods: A total of 237 persons with dementia and their caregivers were included from a previous observational study. HRQOL was assessed by the EuroQol-5D and the number of met needs by the Camberwell Assessment of Needs for the Elderly. The Actor-Partner Interdependence Model framework was used to analyze the effect of an individual’s self or proxy-reported met needs on their own HRQOL (actor effects), and an individual’s self or proxy-reported met needs on the other dyad member’s HRQOL (partner effects). Results: The number of self-reported met needs by persons living with dementia was negatively associated with their own HRQOL (actor effect b = −0.200, p < 0.001), and the HRQOL of informal caregivers (partner effect b = −0.114, p = 0.001). The number of proxy-reported met needs by informal caregivers was negatively associated with their own HRQOL (actor effect b = −0.105, p < 0.001) but not the person living with dementia’s HRQOL (-0.025, p = 0.375). Conclusion: Study findings suggest that both self-reported and informal caregiver proxy-reported met needs in persons living with dementia should be considered in research and practice because they have different implications for each dyad members’ HRQOL.
AB - Objective: This study examined the dyadic association of self and informal caregiver proxy-reported met needs in persons living with dementia on the health-related quality of life (HRQOL). Methods: A total of 237 persons with dementia and their caregivers were included from a previous observational study. HRQOL was assessed by the EuroQol-5D and the number of met needs by the Camberwell Assessment of Needs for the Elderly. The Actor-Partner Interdependence Model framework was used to analyze the effect of an individual’s self or proxy-reported met needs on their own HRQOL (actor effects), and an individual’s self or proxy-reported met needs on the other dyad member’s HRQOL (partner effects). Results: The number of self-reported met needs by persons living with dementia was negatively associated with their own HRQOL (actor effect b = −0.200, p < 0.001), and the HRQOL of informal caregivers (partner effect b = −0.114, p = 0.001). The number of proxy-reported met needs by informal caregivers was negatively associated with their own HRQOL (actor effect b = −0.105, p < 0.001) but not the person living with dementia’s HRQOL (-0.025, p = 0.375). Conclusion: Study findings suggest that both self-reported and informal caregiver proxy-reported met needs in persons living with dementia should be considered in research and practice because they have different implications for each dyad members’ HRQOL.
KW - Dementia
KW - health-related quality of life
KW - informal caregivers
KW - introduction
KW - needs
KW - the actor–partner interdependence model
UR - http://www.scopus.com/inward/record.url?scp=85169108573&partnerID=8YFLogxK
U2 - https://doi.org/10.1080/13607863.2023.2248047
DO - https://doi.org/10.1080/13607863.2023.2248047
M3 - Article
C2 - 37622184
SN - 1360-7863
JO - Aging and Mental Health
JF - Aging and Mental Health
ER -