TY - JOUR
T1 - The Ethics of Public and Service User Involvement in Health Research
T2 - The Need for Participatory Reflection on Everyday Ethical Issues
AU - Abma, Tineke
AU - Groot, Barbara
AU - Widdershoven, Guy
PY - 2019/8/3
Y1 - 2019/8/3
N2 - In their contribution, Wiggins and Wilbanks (2019) discuss the rise of citizen science and elaborate on several ethical issues that go beyond standard approaches in research ethics. They rightly say that citizen science, in including the public in scientific research, relates to participatory action research and action research. They notice that this is no longer prominent in current forms of citizen science, which focus on involving the public in data collection and data analysis. We argue that participatory health research (PHR), which, in terms of Wiggins and Wilbanks (2019), emphasizes co-creation with rather than contribution of the public, may help to identify ethical issues that are not in the forefront, and to find new ways of dealing with them by focusing on relationships between citizen researchers and academic researchers and fostering participatory reflection on everyday ethical issues.
AB - In their contribution, Wiggins and Wilbanks (2019) discuss the rise of citizen science and elaborate on several ethical issues that go beyond standard approaches in research ethics. They rightly say that citizen science, in including the public in scientific research, relates to participatory action research and action research. They notice that this is no longer prominent in current forms of citizen science, which focus on involving the public in data collection and data analysis. We argue that participatory health research (PHR), which, in terms of Wiggins and Wilbanks (2019), emphasizes co-creation with rather than contribution of the public, may help to identify ethical issues that are not in the forefront, and to find new ways of dealing with them by focusing on relationships between citizen researchers and academic researchers and fostering participatory reflection on everyday ethical issues.
UR - http://www.scopus.com/inward/record.url?scp=85069666664&partnerID=8YFLogxK
UR - https://www.scopus.com/inward/record.uri?partnerID=HzOxMe3b&scp=85069666664&origin=inward
UR - https://www.ncbi.nlm.nih.gov/pubmed/31544648
U2 - https://doi.org/10.1080/15265161.2019.1619869
DO - https://doi.org/10.1080/15265161.2019.1619869
M3 - Comment/Letter to the editor
C2 - 31544648
SN - 1526-5161
VL - 19
SP - 23
EP - 25
JO - American Journal of Bioethics
JF - American Journal of Bioethics
IS - 8
ER -