TY - JOUR
T1 - The first step in developing an International Classification of Functioning, Disability and Health Core Set for Vision Loss
T2 - A systematic review
AU - Billiet, Lorenzo
AU - van Nispen, Ruth M A
AU - De Baets, Stijn
AU - de Vries, Ralph
AU - Van de Velde, Dominique
AU - van der Aa, Hilde P A
N1 - Funding Information: This research was funded by The Netherlands Organisation for Health Research and Development program Insight Society (ZonMw Programma Inzicht, grant number 94314003). Publisher Copyright: © 2024 The Authors. Ophthalmic and Physiological Optics published by John Wiley & Sons Ltd on behalf of College of Optometrists.
PY - 2024/3
Y1 - 2024/3
N2 - AIM: As a first step in developing an International Classification of Functioning, Disability and Health (ICF) Core Set for adults with vision loss, this systematic review sought to identify the researchers' perspective by identifying the most often used outcome measures and research topics obtained from studies on adults with vision loss.METHODS: PubMed, Embase, CINAHL, APA PsycINFO and Web of Science were searched for studies on vision loss. Meaningful outcome measures and research topics were linked to the ICF components: environmental factors, body functions, body structures and the Activities and Participation life domains.RESULTS: After deduplication, 7219 records remained, of which 2328 articles were eligible for further review. For feasibility reasons, approximately 20% were randomly chosen from every publication year, resulting in 446 included articles. After full-text reading, 349 articles remained, describing 753 outcome measures based on questionnaires and 2771 additional research topics that could be linked to the ICF. Most were linked to the component Activities and Participation, with a focus on recreation and leisure activities (ICF code d920, 70%), reading (d166, 34%) and driving (d475, 27%). For the component body function, seeing functions (b210, 83%) were most often reported. Outcome measures and research topics were least often linked to the body structure component and environmental factors.CONCLUSION: The broad range of ICF categories identified in this systematic review represents the variety of functioning typical for adults with vision loss. These results reflect the focus of researchers over the past 21 years by using various vision-related outcomes. In our next steps to develop the ICF Core Set for Vision Loss, we will include perspectives of experts and lived experience.
AB - AIM: As a first step in developing an International Classification of Functioning, Disability and Health (ICF) Core Set for adults with vision loss, this systematic review sought to identify the researchers' perspective by identifying the most often used outcome measures and research topics obtained from studies on adults with vision loss.METHODS: PubMed, Embase, CINAHL, APA PsycINFO and Web of Science were searched for studies on vision loss. Meaningful outcome measures and research topics were linked to the ICF components: environmental factors, body functions, body structures and the Activities and Participation life domains.RESULTS: After deduplication, 7219 records remained, of which 2328 articles were eligible for further review. For feasibility reasons, approximately 20% were randomly chosen from every publication year, resulting in 446 included articles. After full-text reading, 349 articles remained, describing 753 outcome measures based on questionnaires and 2771 additional research topics that could be linked to the ICF. Most were linked to the component Activities and Participation, with a focus on recreation and leisure activities (ICF code d920, 70%), reading (d166, 34%) and driving (d475, 27%). For the component body function, seeing functions (b210, 83%) were most often reported. Outcome measures and research topics were least often linked to the body structure component and environmental factors.CONCLUSION: The broad range of ICF categories identified in this systematic review represents the variety of functioning typical for adults with vision loss. These results reflect the focus of researchers over the past 21 years by using various vision-related outcomes. In our next steps to develop the ICF Core Set for Vision Loss, we will include perspectives of experts and lived experience.
KW - ICF
KW - ICF Core Set
KW - International Classification of Functioning
KW - activities
KW - disability and health
KW - participation
KW - vision loss
UR - http://www.scopus.com/inward/record.url?scp=85182837312&partnerID=8YFLogxK
U2 - https://doi.org/10.1111/opo.13269
DO - https://doi.org/10.1111/opo.13269
M3 - Review article
C2 - 38251457
SN - 0275-5408
VL - 44
SP - 413
EP - 425
JO - Ophthalmic & physiological optics : the journal of the British College of Ophthalmic Opticians (Optometrists)
JF - Ophthalmic & physiological optics : the journal of the British College of Ophthalmic Opticians (Optometrists)
IS - 2
ER -