TY - JOUR
T1 - Validation of the Caregiver Priorities and Child Health Index of Life with Disabilities (CPCHILD) in a sample of Dutch non-ambulatory children with cerebral palsy
AU - Zalmstra, Trees A.L.
AU - Elema, Agnes
AU - Boonstra, Anne M.
AU - Maathuis, Karel G.B.
AU - Narayanan, Unni G.
AU - Putten, Annette A.J.V.D.
AU - Reinders-Messelink, Heleen A.
AU - Vlaskamp, Carla
AU - Lindeboom, Robert
N1 - Publisher Copyright: © 2014 Informa UK Ltd.
PY - 2015/3/1
Y1 - 2015/3/1
N2 - Purpose: To assess the reliability and validity of the Caregiver Priorities and Child Health Index of Life with Disabilities (CPCHILD)-Dutch Version, a proxy measure of health status and well-being of non-ambulatory children with cerebral palsy (CP). Methods: Parents (n=66) of 47 boys/19 girls between 5 and 18 years with CP (GMFCS IV-V) participated. To assess the reliability each domain and the total measure was tested for internal consistency, test-retest and inter-rater reliability. Known-groups validity of the CPCHILD-DV was assessed by comparing mean scores of clinically distinct subgroups and convergent validity by correlating the CPCHILD-DV with the TNO-AZL Preschool Children Quality of Life (TAPQOL). Results: The mean CPCHILD-DV total score was 52.0 (SD11.5). Test-retest reliability of the total score as assessed by intraclass correlations (ICC) was 0.73 (domains: 0.55-0.80). For the inter-rater reliability the ICC was 0.64 (domains: 0.58-0.90); the Cronbach's alpha's ranged from 0.60 to 0.95. The CPCHILD score could differentiate between GMFCS levels and between subgroups of cognitive level in the domain "communication and social interaction". There were moderate significant correlations (range rs: 0.31-0.50) between sections of CPCHILD-DV and TAPQOL. Conclusions: The CPCHILD-DV has sufficient reliability and validity as a proxy measure of health status and well-being of non-ambulatory children with CP.Implications for RehabilitationThe Caregiver Priorities and Child Health Index of Life with Disabilities (CPCHILD) can be used to estimate health related quality of life of non-ambulatory children with cerebral palsy.The Dutch version of the CPCHILD has sufficient reliability and validity to be used as a proxy measure in research and clinical practice.
AB - Purpose: To assess the reliability and validity of the Caregiver Priorities and Child Health Index of Life with Disabilities (CPCHILD)-Dutch Version, a proxy measure of health status and well-being of non-ambulatory children with cerebral palsy (CP). Methods: Parents (n=66) of 47 boys/19 girls between 5 and 18 years with CP (GMFCS IV-V) participated. To assess the reliability each domain and the total measure was tested for internal consistency, test-retest and inter-rater reliability. Known-groups validity of the CPCHILD-DV was assessed by comparing mean scores of clinically distinct subgroups and convergent validity by correlating the CPCHILD-DV with the TNO-AZL Preschool Children Quality of Life (TAPQOL). Results: The mean CPCHILD-DV total score was 52.0 (SD11.5). Test-retest reliability of the total score as assessed by intraclass correlations (ICC) was 0.73 (domains: 0.55-0.80). For the inter-rater reliability the ICC was 0.64 (domains: 0.58-0.90); the Cronbach's alpha's ranged from 0.60 to 0.95. The CPCHILD score could differentiate between GMFCS levels and between subgroups of cognitive level in the domain "communication and social interaction". There were moderate significant correlations (range rs: 0.31-0.50) between sections of CPCHILD-DV and TAPQOL. Conclusions: The CPCHILD-DV has sufficient reliability and validity as a proxy measure of health status and well-being of non-ambulatory children with CP.Implications for RehabilitationThe Caregiver Priorities and Child Health Index of Life with Disabilities (CPCHILD) can be used to estimate health related quality of life of non-ambulatory children with cerebral palsy.The Dutch version of the CPCHILD has sufficient reliability and validity to be used as a proxy measure in research and clinical practice.
KW - Caregiver Priorities and Child Health Index of Life with Disabilities
KW - Children
KW - Health related quality of life
KW - Non-ambulatory children with cerebral palsy
KW - Validation
UR - http://www.scopus.com/inward/record.url?scp=84923996789&partnerID=8YFLogxK
U2 - https://doi.org/10.3109/09638288.2014.923524
DO - https://doi.org/10.3109/09638288.2014.923524
M3 - Article
C2 - 24856788
SN - 0963-8288
VL - 37
SP - 411
EP - 416
JO - Disability and rehabilitation
JF - Disability and rehabilitation
IS - 5
ER -