TY - JOUR
T1 - Are older long term care residents accurately prognosticated and consequently informed about their prognosis? Results from SHELTER study data in 5 European countries
AU - Koppel, Maud ten
AU - Onwuteaka-Philipsen, Bregje D.
AU - Roeline Pasman, H.
AU - Bernabei, Roberto
AU - Carpenter, Iain
AU - Denkinger, Michael D.
AU - Onder, Graziano
AU - van der Roest, Henriëtte G.
AU - Topinkova, Eva
AU - van Hout, Hein P. J.
PY - 2018
Y1 - 2018
N2 - Background Informing residents in long term care facilities (LTCFs) about their prognosis can help them prepare for the end of life. This study aimed to examine which proportion of European LTCF residents, close to death, are accurately prognosticated and consequently informed about their prognosis; and to examine factors related to accurate prognostication and discussion of prognosis. Methods A subsample of SHELTER study data was used, consisting of: 500 residents from 5 European countries, who died within 6 months after their last assessment, and had a valid answer on the item ‘End stage disease, 6 or fewer months to live’. This item was used to indicate whether an accurate prognosis was established and discussed with residents. Generalized estimating equations were used to examine factors related to establishment and discussion of accurate prognosis. Results 86.4% of residents close to death did not receive an accurate prognosis. Residents with cancer; fatigue; dehydration; and normal mode of nutritional intake were more likely to have an accurate prognosis established and discussed. Accurate prognostication and prognosis discussion was less likely for residents who: had a diagnosis under ‘other’; initiated interactions; and residents from Germany, Italy and the Netherlands. Conclusions The great majority of residents close to death did not receive an accurate prognosis. Prognostication tools might help clinicians to increase their prognostic accuracy and communication training might help to discuss prognosis with residents.
AB - Background Informing residents in long term care facilities (LTCFs) about their prognosis can help them prepare for the end of life. This study aimed to examine which proportion of European LTCF residents, close to death, are accurately prognosticated and consequently informed about their prognosis; and to examine factors related to accurate prognostication and discussion of prognosis. Methods A subsample of SHELTER study data was used, consisting of: 500 residents from 5 European countries, who died within 6 months after their last assessment, and had a valid answer on the item ‘End stage disease, 6 or fewer months to live’. This item was used to indicate whether an accurate prognosis was established and discussed with residents. Generalized estimating equations were used to examine factors related to establishment and discussion of accurate prognosis. Results 86.4% of residents close to death did not receive an accurate prognosis. Residents with cancer; fatigue; dehydration; and normal mode of nutritional intake were more likely to have an accurate prognosis established and discussed. Accurate prognostication and prognosis discussion was less likely for residents who: had a diagnosis under ‘other’; initiated interactions; and residents from Germany, Italy and the Netherlands. Conclusions The great majority of residents close to death did not receive an accurate prognosis. Prognostication tools might help clinicians to increase their prognostic accuracy and communication training might help to discuss prognosis with residents.
UR - https://www.scopus.com/inward/record.uri?partnerID=HzOxMe3b&scp=85050107147&origin=inward
UR - https://www.ncbi.nlm.nih.gov/pubmed/30020976
U2 - https://doi.org/10.1371/journal.pone.0200590
DO - https://doi.org/10.1371/journal.pone.0200590
M3 - Article
C2 - 30020976
SN - 1932-6203
VL - 13
JO - PLoS ONE
JF - PLoS ONE
IS - 7
M1 - e0200590
ER -