Bringing an end to diabetes stigma and discrimination: an international consensus statement on evidence and recommendations

Jane Speight; Elizabeth Holmes-Truscott; Matthew Garza; Renza Scibilia; Sabina Wagner; Asuka Kato; Victor Pedrero; Sonya Deschênes; Susan J. Guzman; Kevin L. Joiner; Shengxin Liu; Ingrid Willaing; Katie M. Babbott; Bryan Cleal; Jane K. Dickinson; Jennifer A. Halliday; Eimear C. Morrissey; Giesje Nefs; Shane O'Donnell; Anna Serlachius; Per Winterdijk; Hamzah Alzubaidi; Bustanul Arifin; Liz Cambron-Kopco; Corinna Santa Ana; Emma Davidsen; Mary de Groot; Maartje de Wit; Phyllisa Deroze; Stephanie Haack; Richard I.G. Holt; Walther Jensen; Kamlesh Khunti; Karoline Kragelund Nielsen; Tejal Lathia; Christopher J. Lee; Bridget McNulty; Diana Naranjo; Rebecca L. Pearl; Suman Prinjha; Rebecca M. Puhl; Anita Sabidi; Chitra Selvan; Jazz Sethi; Mohammed Seyam; Jackie Sturt; Mythily Subramaniam; Helle Terkildsen Maindal; Virginia Valentine; Michael Vallis; Timothy C. Skinner

doi:10.1016/S2213-8587(23)00347-9

Bringing an end to diabetes stigma and discrimination: an international consensus statement on evidence and recommendations

Jane Speight, Elizabeth Holmes-Truscott, Matthew Garza, Renza Scibilia, Sabina Wagner, Asuka Kato, Victor Pedrero, Sonya Deschênes, Susan J. Guzman, Kevin L. Joiner, Shengxin Liu, Ingrid Willaing, Katie M. Babbott, Bryan Cleal, Jane K. Dickinson, Jennifer A. Halliday, Eimear C. Morrissey, Giesje Nefs, Shane O'Donnell, Anna SerlachiusPer Winterdijk, Hamzah Alzubaidi, Bustanul Arifin, Liz Cambron-Kopco, Corinna Santa Ana, Emma Davidsen, Mary de Groot, Maartje de Wit, Phyllisa Deroze, Stephanie Haack, Richard I.G. Holt, Walther Jensen, Kamlesh Khunti, Karoline Kragelund Nielsen, Tejal Lathia, Christopher J. Lee, Bridget McNulty, Diana Naranjo, Rebecca L. Pearl, Suman Prinjha, Rebecca M. Puhl, Anita Sabidi, Chitra Selvan, Jazz Sethi, Mohammed Seyam, Jackie Sturt, Mythily Subramaniam, Helle Terkildsen Maindal, Virginia Valentine, Michael Vallis, Timothy C. Skinner

Research output: Contribution to journal › Review article › Academic › peer-review

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Abstract

People with diabetes often encounter stigma (ie, negative social judgments, stereotypes, prejudice), which can adversely affect emotional, mental, and physical health; self-care, access to optimal health care; and social and professional opportunities. To accelerate an end to diabetes stigma and discrimination, an international multidisciplinary expert panel (n=51 members, from 18 countries) conducted rapid reviews and participated in a three-round Delphi survey process. We achieved consensus on 25 statements of evidence and 24 statements of recommendations. The consensus is that diabetes stigma is driven primarily by blame, perceptions of burden or sickness, invisibility, and fear or disgust. On average, four in five adults with diabetes experience diabetes stigma and one in five experience discrimination (ie, unfair and prejudicial treatment) due to diabetes, such as in health care, education, and employment. Diabetes stigma and discrimination are harmful, unacceptable, unethical, and counterproductive. Collective leadership is needed to proactively challenge, and bring an end to, diabetes stigma and discrimination. Consequently, we achieved unanimous consensus on a pledge to end diabetes stigma and discrimination.

Original language	English
Pages (from-to)	61-82
Number of pages	22
Journal	The Lancet Diabetes and Endocrinology
Volume	12
Issue number	1
DOIs	https://doi.org/10.1016/S2213-8587(23)00347-9
Publication status	Published - 1 Jan 2024

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Speight, J., Holmes-Truscott, E., Garza, M., Scibilia, R., Wagner, S., Kato, A., Pedrero, V., Deschênes, S., Guzman, S. J., Joiner, K. L., Liu, S., Willaing, I., Babbott, K. M., Cleal, B., Dickinson, J. K., Halliday, J. A., Morrissey, E. C., Nefs, G., O'Donnell, S., ... Skinner, T. C. (2024). Bringing an end to diabetes stigma and discrimination: an international consensus statement on evidence and recommendations. The Lancet Diabetes and Endocrinology, 12(1), 61-82. https://doi.org/10.1016/S2213-8587(23)00347-9

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title = "Bringing an end to diabetes stigma and discrimination: an international consensus statement on evidence and recommendations",

abstract = "People with diabetes often encounter stigma (ie, negative social judgments, stereotypes, prejudice), which can adversely affect emotional, mental, and physical health; self-care, access to optimal health care; and social and professional opportunities. To accelerate an end to diabetes stigma and discrimination, an international multidisciplinary expert panel (n=51 members, from 18 countries) conducted rapid reviews and participated in a three-round Delphi survey process. We achieved consensus on 25 statements of evidence and 24 statements of recommendations. The consensus is that diabetes stigma is driven primarily by blame, perceptions of burden or sickness, invisibility, and fear or disgust. On average, four in five adults with diabetes experience diabetes stigma and one in five experience discrimination (ie, unfair and prejudicial treatment) due to diabetes, such as in health care, education, and employment. Diabetes stigma and discrimination are harmful, unacceptable, unethical, and counterproductive. Collective leadership is needed to proactively challenge, and bring an end to, diabetes stigma and discrimination. Consequently, we achieved unanimous consensus on a pledge to end diabetes stigma and discrimination.",

author = "Jane Speight and Elizabeth Holmes-Truscott and Matthew Garza and Renza Scibilia and Sabina Wagner and Asuka Kato and Victor Pedrero and Sonya Desch{\^e}nes and Guzman, {Susan J.} and Joiner, {Kevin L.} and Shengxin Liu and Ingrid Willaing and Babbott, {Katie M.} and Bryan Cleal and Dickinson, {Jane K.} and Halliday, {Jennifer A.} and Morrissey, {Eimear C.} and Giesje Nefs and Shane O'Donnell and Anna Serlachius and Per Winterdijk and Hamzah Alzubaidi and Bustanul Arifin and Liz Cambron-Kopco and {Santa Ana}, Corinna and Emma Davidsen and {de Groot}, Mary and {de Wit}, Maartje and Phyllisa Deroze and Stephanie Haack and Holt, {Richard I.G.} and Walther Jensen and Kamlesh Khunti and {Kragelund Nielsen}, Karoline and Tejal Lathia and Lee, {Christopher J.} and Bridget McNulty and Diana Naranjo and Pearl, {Rebecca L.} and Suman Prinjha and Puhl, {Rebecca M.} and Anita Sabidi and Chitra Selvan and Jazz Sethi and Mohammed Seyam and Jackie Sturt and Mythily Subramaniam and {Terkildsen Maindal}, Helle and Virginia Valentine and Michael Vallis and Skinner, {Timothy C.}",

note = "Publisher Copyright: {\textcopyright} 2024 Elsevier Ltd",

year = "2024",

month = jan,

day = "1",

doi = "10.1016/S2213-8587(23)00347-9",

language = "English",

volume = "12",

pages = "61--82",

journal = "The Lancet Diabetes and Endocrinology",

issn = "2213-8587",

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Speight, J, Holmes-Truscott, E, Garza, M, Scibilia, R, Wagner, S, Kato, A, Pedrero, V, Deschênes, S, Guzman, SJ, Joiner, KL, Liu, S, Willaing, I, Babbott, KM, Cleal, B, Dickinson, JK, Halliday, JA, Morrissey, EC, Nefs, G, O'Donnell, S, Serlachius, A, Winterdijk, P, Alzubaidi, H, Arifin, B, Cambron-Kopco, L, Santa Ana, C, Davidsen, E, de Groot, M, de Wit, M, Deroze, P, Haack, S, Holt, RIG, Jensen, W, Khunti, K, Kragelund Nielsen, K, Lathia, T, Lee, CJ, McNulty, B, Naranjo, D, Pearl, RL, Prinjha, S, Puhl, RM, Sabidi, A, Selvan, C, Sethi, J, Seyam, M, Sturt, J, Subramaniam, M, Terkildsen Maindal, H, Valentine, V, Vallis, M & Skinner, TC 2024, 'Bringing an end to diabetes stigma and discrimination: an international consensus statement on evidence and recommendations', The Lancet Diabetes and Endocrinology, vol. 12, no. 1, pp. 61-82. https://doi.org/10.1016/S2213-8587(23)00347-9

TY - JOUR

T1 - Bringing an end to diabetes stigma and discrimination

T2 - an international consensus statement on evidence and recommendations

AU - Speight, Jane

AU - Holmes-Truscott, Elizabeth

AU - Garza, Matthew

AU - Scibilia, Renza

AU - Wagner, Sabina

AU - Kato, Asuka

AU - Pedrero, Victor

AU - Deschênes, Sonya

AU - Guzman, Susan J.

AU - Joiner, Kevin L.

AU - Liu, Shengxin

AU - Willaing, Ingrid

AU - Babbott, Katie M.

AU - Cleal, Bryan

AU - Dickinson, Jane K.

AU - Halliday, Jennifer A.

AU - Morrissey, Eimear C.

AU - Nefs, Giesje

AU - O'Donnell, Shane

AU - Serlachius, Anna

AU - Winterdijk, Per

AU - Alzubaidi, Hamzah

AU - Arifin, Bustanul

AU - Cambron-Kopco, Liz

AU - Santa Ana, Corinna

AU - Davidsen, Emma

AU - de Groot, Mary

AU - de Wit, Maartje

AU - Deroze, Phyllisa

AU - Haack, Stephanie

AU - Holt, Richard I.G.

AU - Jensen, Walther

AU - Khunti, Kamlesh

AU - Kragelund Nielsen, Karoline

AU - Lathia, Tejal

AU - Lee, Christopher J.

AU - McNulty, Bridget

AU - Naranjo, Diana

AU - Pearl, Rebecca L.

AU - Prinjha, Suman

AU - Puhl, Rebecca M.

AU - Sabidi, Anita

AU - Selvan, Chitra

AU - Sethi, Jazz

AU - Seyam, Mohammed

AU - Sturt, Jackie

AU - Subramaniam, Mythily

AU - Terkildsen Maindal, Helle

AU - Valentine, Virginia

AU - Vallis, Michael

AU - Skinner, Timothy C.

PY - 2024/1/1

Y1 - 2024/1/1

N2 - People with diabetes often encounter stigma (ie, negative social judgments, stereotypes, prejudice), which can adversely affect emotional, mental, and physical health; self-care, access to optimal health care; and social and professional opportunities. To accelerate an end to diabetes stigma and discrimination, an international multidisciplinary expert panel (n=51 members, from 18 countries) conducted rapid reviews and participated in a three-round Delphi survey process. We achieved consensus on 25 statements of evidence and 24 statements of recommendations. The consensus is that diabetes stigma is driven primarily by blame, perceptions of burden or sickness, invisibility, and fear or disgust. On average, four in five adults with diabetes experience diabetes stigma and one in five experience discrimination (ie, unfair and prejudicial treatment) due to diabetes, such as in health care, education, and employment. Diabetes stigma and discrimination are harmful, unacceptable, unethical, and counterproductive. Collective leadership is needed to proactively challenge, and bring an end to, diabetes stigma and discrimination. Consequently, we achieved unanimous consensus on a pledge to end diabetes stigma and discrimination.

AB - People with diabetes often encounter stigma (ie, negative social judgments, stereotypes, prejudice), which can adversely affect emotional, mental, and physical health; self-care, access to optimal health care; and social and professional opportunities. To accelerate an end to diabetes stigma and discrimination, an international multidisciplinary expert panel (n=51 members, from 18 countries) conducted rapid reviews and participated in a three-round Delphi survey process. We achieved consensus on 25 statements of evidence and 24 statements of recommendations. The consensus is that diabetes stigma is driven primarily by blame, perceptions of burden or sickness, invisibility, and fear or disgust. On average, four in five adults with diabetes experience diabetes stigma and one in five experience discrimination (ie, unfair and prejudicial treatment) due to diabetes, such as in health care, education, and employment. Diabetes stigma and discrimination are harmful, unacceptable, unethical, and counterproductive. Collective leadership is needed to proactively challenge, and bring an end to, diabetes stigma and discrimination. Consequently, we achieved unanimous consensus on a pledge to end diabetes stigma and discrimination.

UR - http://www.scopus.com/inward/record.url?scp=85180567962&partnerID=8YFLogxK

U2 - 10.1016/S2213-8587(23)00347-9

DO - 10.1016/S2213-8587(23)00347-9

M3 - Review article

C2 - 38128969

SN - 2213-8587

VL - 12

SP - 61

EP - 82

JO - The Lancet Diabetes and Endocrinology

JF - The Lancet Diabetes and Endocrinology

IS - 1

ER -

Bringing an end to diabetes stigma and discrimination: an international consensus statement on evidence and recommendations

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