Patient Advisory Board for Chronic Rhinosinusitis - A EUFOREA initiative

B. Pugin; L. Deneyer; C. Bachert; I. Alobid; J. Bousquet; G. de Carlo; W. J. Fokkens; S. Gane; C. Hopkins; C. Holzmeister; C. Langdon; E. S. Lourijsen; V. J. Lund; G. Marien; M. Mavris; J. Mullol; C. Pereira-Perez; P. V. Tomazic; O. Vanderveken; P. W. Hellings; S. F. Seys

doi:https://doi.org/10.4193/Rhin19.012

Patient Advisory Board for Chronic Rhinosinusitis - A EUFOREA initiative

B. Pugin, L. Deneyer, C. Bachert, I. Alobid, J. Bousquet, G. de Carlo, W. J. Fokkens, S. Gane, C. Hopkins, C. Holzmeister, C. Langdon, E. S. Lourijsen, V. J. Lund, G. Marien, M. Mavris, J. Mullol, C. Pereira-Perez, P. V. Tomazic, O. Vanderveken, P. W. HellingsS. F. Seys

Research output: Contribution to journal › Article › Academic › peer-review

16 Citations (Scopus)

Abstract

Despite the high prevalence of chronic rhinosinusitis (CRS) and its impact on patients' quality of life, no European patient organization that advocates for patients with CRS currently exists. To fill this gap and give a voice to CRS patients, EUFOREA has created a patient advisory board, whose goal is to better understand the real-life needs of patients, to raise awareness at political level and to involve patients in the development of novel integrated solutions to accelerate access to accurate diagnosis and treatments. This report summarizes the key discussion points from the kick-off meeting of the board on the 8th June 2018 and provides an outline of the key objectives for the future.

Original language	English
Pages (from-to)	331-335
Journal	Rhinology
Volume	57
Issue number	5
DOIs	https://doi.org/10.4193/Rhin19.012
Publication status	Published - 2019

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Pugin, B., Deneyer, L., Bachert, C., Alobid, I., Bousquet, J., de Carlo, G., Fokkens, W. J., Gane, S., Hopkins, C., Holzmeister, C., Langdon, C., Lourijsen, E. S., Lund, V. J., Marien, G., Mavris, M., Mullol, J., Pereira-Perez, C., Tomazic, P. V., Vanderveken, O., ... Seys, S. F. (2019). Patient Advisory Board for Chronic Rhinosinusitis - A EUFOREA initiative. Rhinology, 57(5), 331-335. https://doi.org/10.4193/Rhin19.012

@article{91655ee5a9e9494492f53930d6a7f3fb,

title = "Patient Advisory Board for Chronic Rhinosinusitis - A EUFOREA initiative",

abstract = "Despite the high prevalence of chronic rhinosinusitis (CRS) and its impact on patients' quality of life, no European patient organization that advocates for patients with CRS currently exists. To fill this gap and give a voice to CRS patients, EUFOREA has created a patient advisory board, whose goal is to better understand the real-life needs of patients, to raise awareness at political level and to involve patients in the development of novel integrated solutions to accelerate access to accurate diagnosis and treatments. This report summarizes the key discussion points from the kick-off meeting of the board on the 8th June 2018 and provides an outline of the key objectives for the future.",

author = "B. Pugin and L. Deneyer and C. Bachert and I. Alobid and J. Bousquet and {de Carlo}, G. and Fokkens, {W. J.} and S. Gane and C. Hopkins and C. Holzmeister and C. Langdon and Lourijsen, {E. S.} and Lund, {V. J.} and G. Marien and M. Mavris and J. Mullol and C. Pereira-Perez and Tomazic, {P. V.} and O. Vanderveken and Hellings, {P. W.} and Seys, {S. F.}",

year = "2019",

doi = "https://doi.org/10.4193/Rhin19.012",

language = "English",

volume = "57",

pages = "331--335",

journal = "Rhinology",

issn = "0300-0729",

publisher = "University Hospital Utrecht",

number = "5",

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Pugin, B, Deneyer, L, Bachert, C, Alobid, I, Bousquet, J, de Carlo, G, Fokkens, WJ, Gane, S, Hopkins, C, Holzmeister, C, Langdon, C, Lourijsen, ES, Lund, VJ, Marien, G, Mavris, M, Mullol, J, Pereira-Perez, C, Tomazic, PV, Vanderveken, O, Hellings, PW & Seys, SF 2019, 'Patient Advisory Board for Chronic Rhinosinusitis - A EUFOREA initiative', Rhinology, vol. 57, no. 5, pp. 331-335. https://doi.org/10.4193/Rhin19.012

TY - JOUR

T1 - Patient Advisory Board for Chronic Rhinosinusitis - A EUFOREA initiative

AU - Pugin, B.

AU - Deneyer, L.

AU - Bachert, C.

AU - Alobid, I.

AU - Bousquet, J.

AU - de Carlo, G.

AU - Fokkens, W. J.

AU - Gane, S.

AU - Hopkins, C.

AU - Holzmeister, C.

AU - Langdon, C.

AU - Lourijsen, E. S.

AU - Lund, V. J.

AU - Marien, G.

AU - Mavris, M.

AU - Mullol, J.

AU - Pereira-Perez, C.

AU - Tomazic, P. V.

AU - Vanderveken, O.

AU - Hellings, P. W.

AU - Seys, S. F.

PY - 2019

Y1 - 2019

N2 - Despite the high prevalence of chronic rhinosinusitis (CRS) and its impact on patients' quality of life, no European patient organization that advocates for patients with CRS currently exists. To fill this gap and give a voice to CRS patients, EUFOREA has created a patient advisory board, whose goal is to better understand the real-life needs of patients, to raise awareness at political level and to involve patients in the development of novel integrated solutions to accelerate access to accurate diagnosis and treatments. This report summarizes the key discussion points from the kick-off meeting of the board on the 8th June 2018 and provides an outline of the key objectives for the future.

AB - Despite the high prevalence of chronic rhinosinusitis (CRS) and its impact on patients' quality of life, no European patient organization that advocates for patients with CRS currently exists. To fill this gap and give a voice to CRS patients, EUFOREA has created a patient advisory board, whose goal is to better understand the real-life needs of patients, to raise awareness at political level and to involve patients in the development of novel integrated solutions to accelerate access to accurate diagnosis and treatments. This report summarizes the key discussion points from the kick-off meeting of the board on the 8th June 2018 and provides an outline of the key objectives for the future.

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DO - https://doi.org/10.4193/Rhin19.012

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VL - 57

SP - 331

EP - 335

JO - Rhinology

JF - Rhinology

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ER -

Patient Advisory Board for Chronic Rhinosinusitis - A EUFOREA initiative

Abstract

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