TY - JOUR
T1 - “Keep All Thee ‘Til the End”: Reclaiming the Lifeworld for Patients in the Hospice Setting
AU - West, Emily
AU - Onwuteaka-Philipsen, Bregje
AU - Philipsen, Hans
AU - Higginson, Irene J.
AU - Pasman, H. R. W.
PY - 2019
Y1 - 2019
N2 - St Christopher’s Hospice, London, was founded to provide specialist care to the incurably ill. We studied the dimensions of difference that set St Christopher’s Hospice apart from hospital care of the dying, focusing on physical space and social organization. Material from 1953 to 1980 from the Cicely Saunders Archive was analyzed qualitatively. Through thematic analysis, quotes were found and analyzed using open coding. Five themes were developed. Themes identified were home/homelike, community, consideration of others, link with outside world, and privacy. The hospice philosophy functioned as the catalyst for the development of the physical environment of St Christopher’s Hospice. Taking Habermas’ concept of lifeworld, it seems that, in contrast to acute care, the need for hospice to formulate their own lifeworld to support and fully engage patients was central. As lifeworlds are culture sensitive, this underlines the need for variation in design and organization of hospices around the world.
AB - St Christopher’s Hospice, London, was founded to provide specialist care to the incurably ill. We studied the dimensions of difference that set St Christopher’s Hospice apart from hospital care of the dying, focusing on physical space and social organization. Material from 1953 to 1980 from the Cicely Saunders Archive was analyzed qualitatively. Through thematic analysis, quotes were found and analyzed using open coding. Five themes were developed. Themes identified were home/homelike, community, consideration of others, link with outside world, and privacy. The hospice philosophy functioned as the catalyst for the development of the physical environment of St Christopher’s Hospice. Taking Habermas’ concept of lifeworld, it seems that, in contrast to acute care, the need for hospice to formulate their own lifeworld to support and fully engage patients was central. As lifeworlds are culture sensitive, this underlines the need for variation in design and organization of hospices around the world.
KW - adults and death
KW - attitudes
KW - culture
KW - death
KW - family
KW - hospice
KW - hospitals
KW - narrative
KW - pain
UR - https://www.scopus.com/inward/record.uri?partnerID=HzOxMe3b&scp=85060856967&origin=inward
UR - https://www.ncbi.nlm.nih.gov/pubmed/29284311
U2 - https://doi.org/10.1177/0030222817697040
DO - https://doi.org/10.1177/0030222817697040
M3 - Article
C2 - 29284311
SN - 0030-2228
VL - 78
SP - 390
EP - 403
JO - Omega (United States)
JF - Omega (United States)
IS - 4
ER -